missmineau
Active member
- Joined
- Dec 2, 2010
- Messages
- 43
- Reason
- Loved one DX
- Country
- CA
- State
- Sask
- City
- The land of living skies
The famous words, if I only knew then what I know now, ring so true to me. My mom, aged 56, started (that I actually saw, I am sure there are a few she didn't tell us about) around last October of 2009. She had been sick on and off, ear infections, colds, so we thought maybe her balance had been off. Then in January of 2010 she slipped and fell and broke her ankle. The bones had trouble aligning properly so in March 2010 she ended up having surgery and steel plates and pins put in. She had quite a bit of trouble with her surgery (infection, the wound opened). As this was all happening she was getting weaker and weaker. We right away suspected it had something to do with the surgery. By Sept 2010, and many visits to the family doctor, my step dad brought my mom to a bigger center better equipted with neuros, specialists, ect, and demanded answers. The first neuro she saw diagnosed her within minutes. Our world shattered. She spent a few weeks in the hospitals undergoing different test, at one point we were told there was a possiblity it wasn't ALS, but to have it confirmed a few days later. Within days, the family as I knew it had changed forever. We are all going through a lot of emotions right now, we are angry, scared, hurt, you name it we feel it. My mom has limb onset ALS, it is mainly affecting her arms and hands right now, her voice changes when she is tired, she walks with a walker now.........I have done a huge amounts of reading and researching, I am very aware of what this disease will do and has done to my family. I find strength in these forums and reading other peoples stories, its nice to be understood and to say things aren't always ok.......to be heard.