notme
Extremely helpful member
- Joined
- Apr 3, 2011
- Messages
- 2,605
- Reason
- PALS
- Diagnosis
- 08/2011
- Country
- US
- State
- Fl
- City
- Orlando
Hi
In defense of her docs, let me say this. Atrial fib can take a while to find. Mine was found by accident...only after I threw a fit about my heart flutters and passing out. The cardiologist did a stress test to pacify me...and I passed out on the treadmill from afib. He apologized for thinking I was a hysterical female.
As to her ALS...A PEG would make things easier for her down the road and is better inserted before its needed if its being considered.
It's a good idea to move the bedroom downstairs. You say your dad is strong, but keep in mind caring for a PAL is taxing on folks much younger, so watch him for signs of exhaustion.
Def look into clinical trials and such. Order equiptment before its needed and get her into a multi-disciplinary clinic.
70 isn't nearly as old as it was 20 years ago!
Last thought...what did they say about the plaque in her brain? Please ask the neuro about it.
Take care and ask any questions you need. We are all here for you.
In defense of her docs, let me say this. Atrial fib can take a while to find. Mine was found by accident...only after I threw a fit about my heart flutters and passing out. The cardiologist did a stress test to pacify me...and I passed out on the treadmill from afib. He apologized for thinking I was a hysterical female.
As to her ALS...A PEG would make things easier for her down the road and is better inserted before its needed if its being considered.
It's a good idea to move the bedroom downstairs. You say your dad is strong, but keep in mind caring for a PAL is taxing on folks much younger, so watch him for signs of exhaustion.
Def look into clinical trials and such. Order equiptment before its needed and get her into a multi-disciplinary clinic.
70 isn't nearly as old as it was 20 years ago!
Last thought...what did they say about the plaque in her brain? Please ask the neuro about it.
Take care and ask any questions you need. We are all here for you.
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