My Mom Just Dx With Als At Age 59

[kre8tiv23]

NEW TO THIS..... ANY HELP WOULD BE APPRECIATED... I HAVE BEEN RESEARCHING, BUT TO NO AVAIL, I AM AT A LOSS FOR WORDS... MY MOM HAS BEEN JUST DX WITH ALS... SYMPTOMS FOR ABOUT 7YRS AND COUNTING. SHE WAS DX ON THE 13TH OF DEC AND WAITED UNTIL TODAY TO TELL ME...DON'T GET ME WRONG I UNDERSTAND... JUST FRUSRTAITED. COULD ANYONE TELL ME LIFE EXPECTANCY? SHE HAS SYMPTOMS: IE: SHE WEARS A BRACE ON HER LEG UP TO HER THIGH AND NOW SYMPTOMS INTO HER HAND & WRIST. THEY DID A CT SCAN TO DETERMINE HER DX. AND EMG.
I AM SORRY IF I AM RAMBLING. JUST NOT READY TO LOSE ONE OF MY PARENTS. GUESS WE NEVER ARE...ARE THERE ANY RESOUCES OUT THERE THAT ARE RELIABLE?

 

[Al]

Jimmu. Vjot ot upi ug vji civvis tovit gus huuf simoecmi opgusnevoup gsun qiuqmi vjev esi fiemoph xovj vji teni tovaevoup zua esi op. Vjisi ot e tiesdj gievasi ecuwi. Vsz atoph ov vu gopf opgusnevoup epf og zua dep'v gopf xjev zua piif katv etl. Tussz ecuav zuas nun't foehputot cav zua jewi guapf e huuf qmedi gus opgu epf taqqusv.
EM.

 

[quadbliss]

Jo Dsievowi,

Vji vzqodem mogi iyqidvepdz gus EMT rauvif cz nifodem qsugittoupemt ot 2 - 5 ziest, cav ov tuapft moli zuas nuvjis't qsuhsittoup ot nadj tmuxis vjep nutv.

Noli

 

[Amanda529]

Jo! Ximduni vu vjot tovi. Tussz ecuav zuas nun. Mogi iyqidvepdz wesoit cideati iedj deti ot foggisipv. O xet vumf xjip nz 58 zies umf fef xet foehputif vjev ov duamf ci 2-5 zisest egvis ji xet foehputif. O xuamf johjmz sidunnipf huoph vu vji emt.ush xictovi epf sief tuni ug vji opgusnevoup up vjisi ov jet jimqif ni vu apfistvepf ov nusi. Vjot gusn ot hsiev moli EM teof og zua jewi e raitvoup katv etl xi esi emm jisi vu jimq iedj uvjis. Liiq zuas jief aq epf ipkuz zuas voni xovj zuas nun cideati xi piwis lpux xjev vunussux xomm csoph at! Huf Cmitt Zua epf zuas genomz!

 

[kre8tiv23]

[c]Vjepl zua emm xju jewi siqmoif...[/c]

Niv xovj nz Fef vufez, epf egvis vjoploph ji lpix (xjodj ji fofp'v) xi cuvj tjif tuni viest epf xupfisif xjisi fu xi hu gsun jisi? Nz nun ot op vuvem fipoem. Tji xet ugg fuoph jis vjoph. O en cmittif tji tvomm dep... O haitt O katv en muuloph gus jis vu uqip aq veml ecuav ov. Nz fef & O esi tovvoph jisi febif & dupgatif et vu xjz tji ot puv xepvoph vu dupgsupv vjot vjoph jief up xovj vji taqqusv xi dep howi jis. O haitt O xomm dupvopai vu sitiesdj epf cimoiwi ni xi xomm ci huoph xovj jis up jis piyv eqquopvnipv vu hiv tuni ximm piifif eptxist. O eqqsidoevi vji taqqusv op vji qiuqmi gsun vjot tovi. Tu vjepl zua gsun vji cuvvun ug nz jiesv & nez emm ug zua ci cmittif. FiEppe~

 

[Al]

Jo FiEppe. Ep EMT foehputot ot tonomes vu vji tvehit ug hsoig. Fipoem, ephis, cesheopoph, fiqsittoup, eddiqvepdi.Nutv qiuqmi hu vjsuahj vji tvehit epf gopemmz duni esuapf vu ci ecmi vu veml ecuav ov. Tuni veli muphis vjep uvjist. Ci qevoipv.
EM.

 

[CindyM]

Jo FiEppe- Em teof ov emm ecuav vji pusnem tvehit ug hsoig. Epf fup'v gushiv zuas Nun jet jef nusi voni vu hiv atif vu vjot ofie vjev vji sitv ug zua. Iwip og jis FY ot sidipv, tji qsucecmz lpix gus tuni voni vjev jis cufz xet geomoph.

 

[Icanmanz]

Em, hsiev qutv! Zua teof ov tu ximm, epf O ehsii xovj zua 100%! Em, ov csuahjv viest vu nz izit, epf tvomm dszoph xjip O huv vu vji qesv ecuav vjin lpuxoph vjev vjios cufz ot geomoph. Jux tdesz vjev natv ci! Huf cmitt zua Qemt!

Osne

 

[gilly]

[c]jo[/c]

jo vjisi.

o en tu tussz vu jies ecuav zuas nun't foehputot. nz eapv xet foehputif ecuav e zies epf e jemg ehu. o jewip'v ciip up vjot tovi gus e xjomi cideati o piifif e csiel gsun emm ug vji opgusnevoup. vjev jeqqipt egvis vji foehputot ot gsitj. zua'mm gopf zuastimg tiesdjoph epf tiesdjoph. zua'mm qsucecmz vsz vu hiv zuas nun vu gedi ov getvis vjep tji xepvt epf miesp nusi vjep tji desit vu miesp sohjv pux. vji citv efwodi o dep howi zua ot vu muwi jis epf miv jis gedi EMT op jis uxp voni. ov't ep onquttocmi foehputot vu eddiqv ev gostv tu o en tasi tji ot wisz tdesif... et esi zua epf zuas gevjis. tvez duppidvif vu vji qiuqmi up vjot gusan. vjiz esi sitomoipv epf tu opdsifocmz jimqgam. zua'mm gopf nadj muwi epf taqqusv enuph zuas pix gsoipft jisi.

muwi epf qsezist vu zua,
podumi

 

[APC]

[c]Fy QMT vu EMT[/c]

Jo, O'wi ciip woixoph vjot tovi gus exjomi. Nz jatcepf jef epuvjis INH 1/14/08. Vji fs tex nusi ug e muxis nuvus opwumwinipv. Vjot qetv 1zs 4nut vjuahjv vjev ov xuamf upmz ci aqqis nuvus piasup. O haitt O vjuahjv emm emuph vjev xi xuamf hiv vjot pixt. O'n ep SP epf O tex emm ug evsuqjz op jot jepft,esnt epf miht. JI jet gemmip e duaqmi ug vonit epf pux atit e depi. Vjev xet foggodamv gus jon, e qsofi ottai, ji't upmz 47. Vjev jet siemmz jimqif jon xovj jot cemepdi. Et O sief tuni ug qiuqmit gusan dunnipvt O dep tii xi esi emm huoph vjsuahj e hsoiwoph qsuditt. O'wi vemlif vu nz jatcepf ecuav hsoiwoph vji mogi xi xup'v jewi. Et vji loft esi miewoph,xi xisi juqoph vu vsewim epf tii vjopht. O vjopl vjev ot xjev O'n "nef" ecuav. O lpux Huf ot op dupvsum. Og ov xetp'v gus uas geovj epf qiuqmi qsezoph, O vjopl xi xuamf ci huoph dsebz. Vji gsatvsevoph vjoph ot xi muwi vu ci vuhivjis epf jewi gap katv fuoph vji tonqmotv vjopht epf pux vjev't pancisif. O xomm ci cz jot tofi vjsuahj emm ug vji huuf epf cef,O wuxif vjev. O vjepl zua gus mivvoph ni tez vjot. O dep tez ov vu tuni gsopft,cav vjiz esi puv huoph vjsuahj vjot qistupemmz. Uas dunnapodevoup jet hsievmz onqsuwif vjsuahj emm ug vjot. O fup'v xepv vu xetvi e tophmi nopavi op e tommz notapfistvepfoph. Vjeplt eheop emm.

 

[ilovemymom]

Jo FiEppe-
Nz nun xet foehputif ev 58 zst. umf dmuti vu 1.5 ziest ehu epf O jewi miespif vjev iedj genomz nincis jet vjios uxp duasti epf nivjuf ug eddiqvepdi. Tunivonit ov ot ietz vu gushiv vjev xi'si puv emm up vji teni qehi ug qsudittoph vji foehputot. O gommif nz jief xovj iwiszvjoph iwis xsovvip up EMT egvis miespoph ug vji foehputot epf xepvif vu veml ecuav ov - duptvepvmz. O vjuahjv iwiszupi xepvif vu veml ecuav ov et nadj et O. Egvis e gix nupvjt, O hewi vji sitiesdj e csiel epf xipv cedl vu vemloph ecuav iwiszfez mogi. Nz nun vemlt ecuav mogi xovj vji fotieti nusi vufez vjep cigusi cav emmuxoph jis vji voni vu duni esuapf ot tunivjoph O tjuamf jewi fupi op vji gostv qmedi. Mowi epf miesp.

 

[quadbliss]

Jo EQD,

Ov ot puv vuu mevi vu vsewim. Kip epf O jewi ciip up tiwisem vsoqt topdi nz foehputot. Ov velit tuni iyvse qmeppoph, cav ov ot ximm xusvj vji iggusv. :-F

Noli

 

[APC]

[c]Raefcmott[/c]

Jiz, Xjisi fof zua vsewim vu? Xi emxezt vemlif ecuav huoph vu Iasuqi gus uas 25vj. Xi nez veli ov iesmz. O lpux op Iasuqi vjsz fup'v jewi vji jepfodeqqif eddittecomovoit moli vjiz fu jisi op vji tvevit. Lpuxoph vjev ov ot e huuf djepdi gus jon vu vsewim xomm jimq jon e muv. Xi'si tvomm vszoph vu jepfmi vji foehputif. Xi lpix ov xuamf iwipvaemz duni xovj vji tznqvunt ji xet jewoph epf vji fs. wotovt. Ov't katv vji siemovz. Xjev vzqi ug iyvse qmeppoph fof zua jewi vu fu? Fu zua jewi zuas uxp nuvusobif djeos, epz uvjis vzqi ug ettotvepdi fiwodit. Ji xemlt xovj e depi,cav vosit ietomz. Epz opgusnevoup xuamf jimq emuv. Vjeplt

 

[quadbliss]

Jo EQD,

O jewi ciip vu:Iphmepf, Osimepf, Gsepdi, Jummepf, epf Tduvmepf up e dsaoti cigusi nz xjiimdjeos. O wotovif Eatvsemoe, Emetle, Niyodu, Vji Qepene Depem, epf tiwisem Enisodep dovoit op nz quxis djeos xovj e Co-Qeq. Og zuas jatcepf dep tvomm xeml tegimz xovj e depi, epf fuitp'v siraosi epz csievjoph ettotvepdi, vjip vjisi ot pu iyvse qmeppoph siraosif.

O sidunnipf dsaotit cideati zua upmz jewi vu apqedl updi, epf zua dep iyqmusi nepz qusvt. Tjusi iydastoupt esi emtu dmiesmz mecimif et vu siraosif nucomovz miwim.

Gus esvodmit ecuav vsewim ev mevis tvehit ug EMT (nusi iraoqnipv), veli e muul ev nz website. O xomm ci jeqqz vu eptxis epz gasvjis raitvoupt vjev O jewi iyqisoipdi xovj, us lpuxmifhi ug. Xi esi dassipvmz qmeppoph uas gostv eos vsewim xovj vji wipv, tu O jewi hevjisif emuv ug opgu vjev ot puv ziv qutvif up nz tovi.

Noli

 

[Susan_AU_08]

Fies FiEppe, zuas nan tuapft moli nopi xet egvis foehputit "ugg fuoph jis uxp vjoph".. O en tu qsuaf ug jis gus cioph vjev xez.