Jessielf,
Reading your story truly hit home. My father passed away June 21st of Bulbar ALS. He was diagnosed on June 6th. He got sick real fast. I was with him the week he passed. I left on Wednesday, he got put in hospice that night. Next day trouble breathing, didn't want the bi-pap mask or oxygen. They gave him a little morphine to help relax him & his breathing. He quitely passed with my mom by his side. I was just thinking of him, crying, decided to check out the site & saw your post. I understand your pain. I feel terrible for my mom. She lost her life partner. If there is anything to say about our parents passing is that all though this desease is horrible, they went fast. I'm sad & I miss my dad but he was ready to go. He made peace with the world, said his goodbyes. I am grateful he is not suffering anymore. It is our job now to help raise awareness about ALS.