mndireland
Distinguished member
- Joined
- May 17, 2008
- Messages
- 123
- Reason
- Loved one DX
- Diagnosis
- 10/2007
- Country
- IE
- State
- Ireland
- City
- Dublin
I dont really know what to do, my mom came home from hospital 2 weeks ago with a bi pap machine, she hates it! If i can get it on her for an hour or 2 a day its a bonus. She moans about it and then makes up an excuse to take it off like needs a drink or needs the toilet etc. It is a big mask and I am waiting on the doctor to come back from holidays to see if they can change the mask maybe to something more comfortable. 2 days ago she said she wasnt putting it on again and she didnt care what happened, i told her she could die (thinking it would scare her) but her reply was I dont care anymore. But later that evening she was really gasping for breath and asked me to put it on, which i thought was a miracle and she had realised she needs it, but since then we have the same battles to get it on each day. I feel like the mother and her the daughter as I have to promise her treats to get it on, like going shopping or something?
Also she wont wear it at night as she tosses so much and it comes off, and is very uncomfortable. I really cant see any difference in her and she is still out of breath all of the time, cannot walk around the house without losing her breath. Does this really work or am i forcing her to use it for no reason? The docs say she should be on it 5 or 6 hours a day but so far this hasnt happened, will it make a huge difference if i force her to do it? I dont want to upset her either and really thought she would come round to it herself. Her fvc was 40% when she first got it, is it too late for bipap? I read that once its in the early 30's this signals the end? How true is this? Does anybody know?
Really scared....
Also she wont wear it at night as she tosses so much and it comes off, and is very uncomfortable. I really cant see any difference in her and she is still out of breath all of the time, cannot walk around the house without losing her breath. Does this really work or am i forcing her to use it for no reason? The docs say she should be on it 5 or 6 hours a day but so far this hasnt happened, will it make a huge difference if i force her to do it? I dont want to upset her either and really thought she would come round to it herself. Her fvc was 40% when she first got it, is it too late for bipap? I read that once its in the early 30's this signals the end? How true is this? Does anybody know?
Really scared....