KHM
New member
- Joined
- Mar 24, 2022
- Messages
- 5
- Reason
- PALS
- Diagnosis
- 09/2021
- Country
- JO
- State
- AM
- City
- Amman
Hello everyone, in Sep. 2021 my mom was having difficulty using her right arm, she wasn't able to left slightly heavy things and use her hand doing small daily tasks, we saw a neurologist after seeing many other doctors, the doctor asked for many tests and all were clear and nothing was wrong, then she asked for doing a EMG test and the doctor's report came out saying a possible motor neuron disease is suspected.. They told my mom that she was okay and needed physical therapy, but the neurologist called us after leaving to say that she suspected having ALS in its early stages,
I had no idea what ALS is, I read about it and that felt like a nightmare. I couldn't believe and didn't want to.. Then I had hope and told myself she might bw wrong.. But as the time passes, I was able to see my mom getting weaker everyday... And she fell with no reason 3 times, now she can barely walk by herself, she has difficulty standing up, lefting things, using her hands, and I recently noticed the split hand clear and obvious in her right hand..
We're doing thw tests again next month, I am scared and I am 100% sure that she has ALS the problem is I can't even think of how to the neurologist is going to tell her about a disease she has never heard of or known it's there and tell her that it's fatal..
I am hopeless, scared, and feel lonely because no one knows except me and my sister.. I read a lot about it, tried supplements, curcumin, magnisium, physical therapy every single day, it is happening rapidly and I have no idea how to manage or help.
I am lost and need some help understand what to do or say... I am afraid it has something to do with the COVID19 vaccine, she was 100% in good health before that and 3 months after she got vaccinated, this started to happen. I hope they find a cure for ALS.. I really hope this will happen before it's too late
I had no idea what ALS is, I read about it and that felt like a nightmare. I couldn't believe and didn't want to.. Then I had hope and told myself she might bw wrong.. But as the time passes, I was able to see my mom getting weaker everyday... And she fell with no reason 3 times, now she can barely walk by herself, she has difficulty standing up, lefting things, using her hands, and I recently noticed the split hand clear and obvious in her right hand..
We're doing thw tests again next month, I am scared and I am 100% sure that she has ALS the problem is I can't even think of how to the neurologist is going to tell her about a disease she has never heard of or known it's there and tell her that it's fatal..
I am hopeless, scared, and feel lonely because no one knows except me and my sister.. I read a lot about it, tried supplements, curcumin, magnisium, physical therapy every single day, it is happening rapidly and I have no idea how to manage or help.
I am lost and need some help understand what to do or say... I am afraid it has something to do with the COVID19 vaccine, she was 100% in good health before that and 3 months after she got vaccinated, this started to happen. I hope they find a cure for ALS.. I really hope this will happen before it's too late
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