• Memoriam wall
    • We've created a memoriam wall to remember our friends
    • If you know someone that battled ALS, please add them here
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SheilaZ

Active member
Joined
Jan 24, 2016
Messages
51
Reason
Lost a loved one
Diagnosis
01/2016
Country
US
State
West Virginia
City
111111
I lost the love of my life, my Hubby, John, on June 5, 2017. ALS is a horrible disease...I pray for a cure one day soon....for all diseases. ALS did not beat John....John beat ALS....with his smile, his determination, his strive to live each and every day with joy, and not sorrow! Even his last day...he was so strong! Not onetime did John ever say "why me"! John was so brave....truly my Hero!! I can't tell you how much I love and miss him....there's not enough words! Yes, I still cry everyday...but he's with me everyday, every hour, every min and second....for he's always in my heart! We had almost 36 years...together! The love we've had before and during his illness...was unwavering! I thank GOD for every second we had together! Through it all we cried at times, we joked, and we laughed....but mostly we lived....ALS did not win...we did!!

I just wanted everyone to know about this amazing man, my Hubby, love of my life...my John....and how I was so lucky to call him mine! He's walking now....no, I'd say he's running! Praise the Lord!!!

GOD BLESS you all, your in my prayers!
Love to all,
Sheila
 

Jhill

Distinguished member
Joined
Mar 13, 2016
Messages
170
Reason
CALS
Diagnosis
03/2016
Country
US
State
PA
City
Oreland
Always thinking of you. Many hugs!!!'

Joan
 

pittsburghgal

Senior member
Joined
Jan 7, 2016
Messages
569
Reason
Lost a loved one
Diagnosis
11/2011
Country
US
State
PA
City
Pittsburgh
Sheila, I am so sorry for your loss of your husband. What a lovely tribute you posted. You and your family are in my thoughts and prayers.

Sharon
 

Angiegal

Distinguished member
Joined
Feb 15, 2017
Messages
309
Reason
PALS
Diagnosis
09/2015
Country
CA
State
Ontario
City
Kitchener
So sorry for your loss.

Angie
 

4tloml

Senior member
Joined
Sep 15, 2014
Messages
578
Reason
CALS
Diagnosis
04/2013
Country
US
State
CA
City
Suburban
Sheila, I am so very sorry for your profound loss. Your tribute to John is lovely. Finding a love that strong and long is a rare thing. I'm glad you've had that to sustain you and know that it will continue to as you journey on. Peace to you.
 

lgelb

Moderator
Forum Supporter
Joined
Nov 5, 2009
Messages
13,629
Reason
Lost a loved one
Diagnosis
00/0000
Country
US
State
WA
City
Seattle
I'm very sorry for your loss, Sheila, but happy that you can see John running still.

Best,
Laurie
 

affected

Guru status reached
Joined
Apr 26, 2013
Messages
16,096
Reason
Lost a loved one
Diagnosis
05/2013
Country
OZ
State
AU
City
lala land
I'm so very sorry for your loss xxx
 

KimT

Extremely helpful member
Forum Supporter
Joined
Nov 18, 2014
Messages
4,799
Reason
PALS
Diagnosis
08/2015
Country
US
State
South
City
The Beach
God bless you and your family, Sheila. John is running free!
 

Gembead

Senior member
Joined
Oct 11, 2014
Messages
592
Reason
Loved one DX
Diagnosis
10/2014
Country
Aus
State
Western Australia
City
Bridgetown
It wonderful that you have your faith to carry you thru, my thoughts are with you, and my God continue to hold you in the palm of his hand. Love and hugs Gem
 

adrivtham

Distinguished member
Joined
Feb 23, 2016
Messages
116
Reason
Lost a loved one
Diagnosis
02/2016
Country
US
State
texas
City
katy
I am so sorry, many hugs to you
Adriana
 

Buckhorn

Senior member
Joined
Jan 3, 2016
Messages
730
Reason
Lost a loved one
Diagnosis
12/2015
Country
US
State
PA
City
Small town
Sheila, my heart goes out to you. So very sorry for your loss.
 

Cattaztrophy

Active member
Joined
Sep 10, 2016
Messages
36
Reason
Lost a loved one
Diagnosis
05/2016
Country
US
State
North Carolina
City
Carolina Shores
Hi Sheila,

I'm right there with you. I lost my husband of 44 years on June 8,2017 so you see I know exactly how you're feeling. My husband, JC had bulbar onset and lived 13 months after diagnosis. Looking back, I know it had started way before diagnosis but, we had no idea that what he was experiencing was so serious.

Our faith is strong but damn it still hurts so bad sometime. I'm sending you my deepest sympathy for your great loss. I thank God that I was loved by him every day.

Let's talk again.
Louise
 

SheilaZ

Active member
Joined
Jan 24, 2016
Messages
51
Reason
Lost a loved one
Diagnosis
01/2016
Country
US
State
West Virginia
City
111111
Louise, I'm so very sorry for your loss, so very sorry! Like you and your JC, we knew something was wrong, but never dreamed it was ALS. John lived a little over 16 months after being diagnosed. I made videos of John and us...laughing...living! I'm so thankful I did.....I watch them constantly! I loss my Mother, who lived with us, unexpectedly, 19 days before I loss my John....I lean on the Lord..a lot! My John is walking now..he hadn't walked for over a year! John and my Mother are always with me...always! So many who lossed love ones and to ALS...I pray for a cure...please Lord let it be now!

Louise, I pray GOD wraps HIS loving arms around you and your family...and gives you all comfort! I'm praying for you all!

Love and prayers
Sheila
 

scaredwifetx

Very helpful member
Forum Supporter
Joined
Jul 25, 2015
Messages
1,606
Reason
CALS
Diagnosis
07/2015
Country
US
State
tx
City
Dallas
Sorry for your loss.
 

Jlynn

Distinguished member
Joined
Mar 16, 2016
Messages
415
Reason
Lost a loved one
Diagnosis
12/2015
Country
US
State
NH
City
Wolfeboro
Your John is whole again...my thoughts and prayers are with you.
 
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