Booboo27872
New member
- Joined
- Jan 18, 2019
- Messages
- 2
- Reason
- PALS
- Country
- AU
- State
- NSW
- City
- Young
Hi.
I’m 46 with a 9yr old daughter and identical twin boys who are 7yrs old. Their father died in 2016 and I’ve been diagnosed with MND (ALS) jan 2018.
I’m from Australia and my mum passed away November 2018 from MND. I have the gene.
I have 5 siblings. Only one other has had a gene check and she too has the gene.
I’m the youngest MND from my family with my mum, my uncle, my grandmother, my great uncle and my great grandfather dignosed at 58 and died at 63. (Except mum who died at 66yrs and 11mths).
I was a teaching primary principal though I medically retired as soon as I was diagnosed so that I could give my time to my own young children
I’m 46 with a 9yr old daughter and identical twin boys who are 7yrs old. Their father died in 2016 and I’ve been diagnosed with MND (ALS) jan 2018.
I’m from Australia and my mum passed away November 2018 from MND. I have the gene.
I have 5 siblings. Only one other has had a gene check and she too has the gene.
I’m the youngest MND from my family with my mum, my uncle, my grandmother, my great uncle and my great grandfather dignosed at 58 and died at 63. (Except mum who died at 66yrs and 11mths).
I was a teaching primary principal though I medically retired as soon as I was diagnosed so that I could give my time to my own young children