my journey winding down
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azgirl
Senior member
- Joined
- Jan 20, 2014
- Messages
- 961
- Reason
- PALS
- Diagnosis
- 12/2013
- Country
- US
- State
- AZ
- City
- Tucson
hi Pete. Here we are still here! I spend more days in bed and up the Ativan when feeling distressed at all. You have more on your plate to worry about your son too.
this is tough, the hardest part leaving all my wonderful friends and family. But today feeling pretty good.
love ya Pete!
this is tough, the hardest part leaving all my wonderful friends and family. But today feeling pretty good.
love ya Pete!
Narrowminded
Extremely helpful member
- Joined
- Apr 30, 2016
- Messages
- 2,830
- Reason
- Lost a loved one
- Diagnosis
- 07/2007
- Country
- US
- State
- PA
- City
- Pittsburgh
Happy to see you check in Kay. Still in my thoughts and prayers.
Luv ya
Luv ya
Now stay at home dad
Active member
- Joined
- Oct 7, 2015
- Messages
- 33
- Reason
- PALS
- Diagnosis
- 09/2015
- Country
- US
- State
- CA
- City
- Coarsegold
I feel I am in the same boat as you and Pete. Some days it's a constant struggle trying to breath and others I feel I have some good hours of breathing without complication and then the struggles start again. I'm sorry you're going through this as well. It is torture.
How long will this last? Sometimes I think I am overreacting and think maybe I can live like this for a while. Then there are days where I just want to sleep and cannot because I can't breath well and can't wait for this to end. It's all so confusing for me. Should I be doing something to help ease toward the end? Are either of you on hospice? I wonder if they help with that. Anyway, sorry for the rant. I wish you and anyone else didn't have to go through this.
How long will this last? Sometimes I think I am overreacting and think maybe I can live like this for a while. Then there are days where I just want to sleep and cannot because I can't breath well and can't wait for this to end. It's all so confusing for me. Should I be doing something to help ease toward the end? Are either of you on hospice? I wonder if they help with that. Anyway, sorry for the rant. I wish you and anyone else didn't have to go through this.
azgirl
Senior member
- Joined
- Jan 20, 2014
- Messages
- 961
- Reason
- PALS
- Diagnosis
- 12/2013
- Country
- US
- State
- AZ
- City
- Tucson
Pete and I both on hospice. My group helps manage anxiety air hunger and pain. I chose choose when I want to e lucid and when I just want you to sleep. I told them my highest priority was comfort.
feel like I'm stable since this thread was started. Taking it one day at time, but pain very managers able. Ativan and marijuana combo makes me slip away in peaceful sleep
!
feel like I'm stable since this thread was started. Taking it one day at time, but pain very managers able. Ativan and marijuana combo makes me slip away in peaceful sleep
!
affected
Guru status reached
- Joined
- Apr 26, 2013
- Messages
- 16,096
- Reason
- Lost a loved one
- Diagnosis
- 05/2013
- Country
- OZ
- State
- AU
- City
- lala land
Beautiful Kay, you are so high in my thoughts every day.
I know from experience that the key is allowing the meds to be given at the frequency and level needed. I'm so glad you are able to be kept comfortable this way and yet have those times of lucidity. It was the same with Chris. He had some quite lucid periods, but he was kept peaceful and without pain or fear.
I draw a lot of comfort from knowing you are being held in this place during this last phase. Many gentle hugs to you my friend xxx
I know from experience that the key is allowing the meds to be given at the frequency and level needed. I'm so glad you are able to be kept comfortable this way and yet have those times of lucidity. It was the same with Chris. He had some quite lucid periods, but he was kept peaceful and without pain or fear.
I draw a lot of comfort from knowing you are being held in this place during this last phase. Many gentle hugs to you my friend xxx
He has tried CBD oil and it seems to help. I am getting him a nebulizer today.azgirl
Senior member
- Joined
- Jan 20, 2014
- Messages
- 961
- Reason
- PALS
- Diagnosis
- 12/2013
- Country
- US
- State
- AZ
- City
- Tucson
since coming up with the right drug cocktail of Ativan and mj I've felt so much better. Lungs sounds better as reported by hospice nurse. This reprieve has gone on three weeks. It's strange but I'm going to enjoy while I can. Went to our local zoo for short outing with grandkids and helpful! Caregivers!
- Joined
- May 16, 2018
- Messages
- 257
- Reason
- Loved one DX
- Diagnosis
- 10/2015
- Country
- FR
- State
- Ile de France
- City
- mortcerf
Yes kick it kids ! Great !
NothingButLove
Distinguished member
- Joined
- Dec 25, 2016
- Messages
- 106
- Reason
- Lost a loved one
- Diagnosis
- 11/2016
- Country
- US
- State
- CA
- City
- Anaheim
That picture made me so happy today! I'm so glad you're able to go outside and enjoy the day. Looking great!
Rob
Rob
dldugan
Distinguished member
- Joined
- Oct 5, 2018
- Messages
- 203
- Reason
- PALS
- Diagnosis
- 09/2018
- Country
- US
- State
- illinois
- City
- Mahomet
Thank you for posting. As one who is starting this journey it is very helpful to be able to put together a map to follow using the successes of those on the same trail.
Jlynn
Distinguished member
- Joined
- Mar 16, 2016
- Messages
- 415
- Reason
- Lost a loved one
- Diagnosis
- 12/2015
- Country
- US
- State
- NH
- City
- Wolfeboro
Thanks for sharing your beautiful pictures! They really made me smile. I'm so happy that you were able to get out and have taken advantage of the opportunity. Wonderful.
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