Eddie Kirk
New member
- Joined
- Nov 26, 2012
- Messages
- 2
- Reason
- PALS
- Diagnosis
- 11/2012
- Country
- US
- State
- Oregon
- City
- Portland
Hi members and Staff;
I am Eddie Kirk.
I have been having some changes occur to my health. I am seeing a neurologist. He has said that I have early onset ALS.
He is kind of saying that this may be ALS: although I have not gotten a firm diagnosis.
This has started on my right leg. For a long time, (6months) my right leg felt like it weighed 200 pounds. I had to use a walker. My weight has dropped to below high school weight. Now the right leg muscles are twitching. Under the skin you can see the rippling. I have had an EMG (one) I have also had a swallow test? Where they found I had something wrong with my tongue. I have been choking on things more than normal. I was given a long list of things to eat and not eat.
Okay. I have been reading the forum for about a day. But have read other things on the net. I am getting worried. I see others preparing for the eventual outcome of the disease. There getting chairs and beds and other things I guess they will need. I also see that most do not receive diagnoses until the disease progresses further and then they only live another few years.
I am on SSI and get about 700 per month here in Oregon. So I can not afford the items I see others have. I do have a family; Daughter 21 living here helping take care of me. I also have a wife who is disabled herself and will not be able to do much for me as these symptoms’ progresses.
I do have tons of questions, I would like to know if anyone else has experienced the heavy feeling in there lower extremities.
I own and operate a web forum in Portland Oregon for medical Patients.
I did not think I would ever be told I may have ALS. Right now I feel fine. I do fall on occasion now and my head is ringing constantly. I have lots of weakness. I don’t know where to start. I do have another appt to see the doctor in two days. (Neurologist)
Thank you for having me. And I am sorry your all here.
God Bless you and the members here.
Kirk
I am Eddie Kirk.
I have been having some changes occur to my health. I am seeing a neurologist. He has said that I have early onset ALS.
He is kind of saying that this may be ALS: although I have not gotten a firm diagnosis.
This has started on my right leg. For a long time, (6months) my right leg felt like it weighed 200 pounds. I had to use a walker. My weight has dropped to below high school weight. Now the right leg muscles are twitching. Under the skin you can see the rippling. I have had an EMG (one) I have also had a swallow test? Where they found I had something wrong with my tongue. I have been choking on things more than normal. I was given a long list of things to eat and not eat.
Okay. I have been reading the forum for about a day. But have read other things on the net. I am getting worried. I see others preparing for the eventual outcome of the disease. There getting chairs and beds and other things I guess they will need. I also see that most do not receive diagnoses until the disease progresses further and then they only live another few years.
I am on SSI and get about 700 per month here in Oregon. So I can not afford the items I see others have. I do have a family; Daughter 21 living here helping take care of me. I also have a wife who is disabled herself and will not be able to do much for me as these symptoms’ progresses.
I do have tons of questions, I would like to know if anyone else has experienced the heavy feeling in there lower extremities.
I own and operate a web forum in Portland Oregon for medical Patients.
I did not think I would ever be told I may have ALS. Right now I feel fine. I do fall on occasion now and my head is ringing constantly. I have lots of weakness. I don’t know where to start. I do have another appt to see the doctor in two days. (Neurologist)
Thank you for having me. And I am sorry your all here.
God Bless you and the members here.
Kirk