Tony97218
New member
- Joined
- Aug 13, 2021
- Messages
- 3
- Reason
- Lost a loved one
- Diagnosis
- 04/2018
- Country
- US
- State
- OR
- City
- Portland
Greetings, My girlfriend/wife was diagnosed with ALS in 2018. I remember the first time we sought for answers. Tripping over door mats and slurred speech. We went to a neurologist and he referred us to another one. We had now landed in an ALS clinic. I told Laurie that she was not cool enough to be like Lou Gehrig. We were told it could be 1 of 20 things. Well, after a month or so we sat in a room and learned that she was cool enough. She had ALS. From that moment, our world changed.
So, I need to fast forward this because I can’t relive the past 3 yrs at this time.
Laurie passed away 7/29/2021
my hope is that in time I will be able to finish this story, I just can’t right now.
someone told me to write down my story and it would make me feel better. Boy were they wrong, I will be back to finish, but not today.
Today,I seek answers. In the end, we spent everything we had on making sure Laurie was comfortable and safe. Has anyone ever gotten a reasonable return on the equipment left behind. I put my career on hold for 3 yrs to are care of her and now the world is a much different place. Kind of scary. I added a pic of her before she took off to Mars. That was her wish
So, I need to fast forward this because I can’t relive the past 3 yrs at this time.
Laurie passed away 7/29/2021
my hope is that in time I will be able to finish this story, I just can’t right now.
someone told me to write down my story and it would make me feel better. Boy were they wrong, I will be back to finish, but not today.
Today,I seek answers. In the end, we spent everything we had on making sure Laurie was comfortable and safe. Has anyone ever gotten a reasonable return on the equipment left behind. I put my career on hold for 3 yrs to are care of her and now the world is a much different place. Kind of scary. I added a pic of her before she took off to Mars. That was her wish