patientkiwi
Member
- Joined
- Jul 22, 2019
- Messages
- 17
- Reason
- CALS
- Diagnosis
- 07/2013
- Country
- NZ
- State
- SI
- City
- Invercargill
Hi My husband was diagnosed with ALS in July 2013. He has had a very slow progression compared to many people and is still doing reasonably well physically - is in a wheelchair full time, hoist for all transfers and is physically weak and has significant voice deterioration but otherwise still doing quite well considering the diagnosis. My question is: His personality has changed a lot. He seems to have no consideration at all for my feelings or needs and is frequently grumpy & unkind so much that he is now very hard to live with - is this quite typical? How do others cope?