IASAD
Active member
- Joined
- Nov 25, 2016
- Messages
- 31
- Reason
- Lost a loved one
- Diagnosis
- 00/0000
- Country
- US
- State
- PA
- City
- Philadelphia
Hi. I was on here in 2016/2017 asking for advice about my husband’s symptoms. It turns out he did have ALS. He passed away June 2018. He was 47. I know WAY more about this disease than I ever wanted to. I’m so sorry for everything you’re all dealing with. I completely understand.
But now, I’m having issues. I know that the chances of me having it are slim and I know I’m also just really hypersensitive about it. So I’m hoping that’s why I’m so worried and it’s just nothing.
I’m 52 years old.
About 8 months ago I noticed that my right arm was getting weaker. I couldn’t lift as much in the gym. When I tried to do certain moves I had shoulder or wrist pain. Fast forward until now. I can’t clean my house or mow my lawn or do a plank or lift anything remotely heavy with that arm. i get pain in my shoulder and i keep pulling muscles. The other day I pulled a forearm muscle just from lifting my coffee cup. There’s a noticeable difference in the way that arm looks compared to the other arm. Well, I can notice it. It’s different than it used to be. my right bicep is smaller than my left, and I’m right handed. I see divets that weren’t there before.
I saw a neurologist a couple months ago. Main reason for going at that time was hand weakness and involuntary jerking in my hands and sometimes other parts of my body (not fasciculations but actual jerks, which have since gone away). He didn’t think this was a cause for concern but instead said I should probably see an orthopedist. He did say that he could do an EMG test if I wanted to. He said it was optional. So I decided not to do it. However I just made an appointment for September because my condition has
I think I would feel better having it done.
I guess I just want you to tell me I just have PTSD and am just hyper aware. I’ve never had any fasciculations. But I’m scared. I know you’ll say that perceived weakness is different from real weakness. However, my late husband had perceived weakness for months before his hands stopped working right. That’s why I’m so scared.
Any thoughts would be appreciated. Thanks.
But now, I’m having issues. I know that the chances of me having it are slim and I know I’m also just really hypersensitive about it. So I’m hoping that’s why I’m so worried and it’s just nothing.
I’m 52 years old.
About 8 months ago I noticed that my right arm was getting weaker. I couldn’t lift as much in the gym. When I tried to do certain moves I had shoulder or wrist pain. Fast forward until now. I can’t clean my house or mow my lawn or do a plank or lift anything remotely heavy with that arm. i get pain in my shoulder and i keep pulling muscles. The other day I pulled a forearm muscle just from lifting my coffee cup. There’s a noticeable difference in the way that arm looks compared to the other arm. Well, I can notice it. It’s different than it used to be. my right bicep is smaller than my left, and I’m right handed. I see divets that weren’t there before.
I saw a neurologist a couple months ago. Main reason for going at that time was hand weakness and involuntary jerking in my hands and sometimes other parts of my body (not fasciculations but actual jerks, which have since gone away). He didn’t think this was a cause for concern but instead said I should probably see an orthopedist. He did say that he could do an EMG test if I wanted to. He said it was optional. So I decided not to do it. However I just made an appointment for September because my condition has
I think I would feel better having it done.
I guess I just want you to tell me I just have PTSD and am just hyper aware. I’ve never had any fasciculations. But I’m scared. I know you’ll say that perceived weakness is different from real weakness. However, my late husband had perceived weakness for months before his hands stopped working right. That’s why I’m so scared.
Any thoughts would be appreciated. Thanks.