anneinma
Active member
- Joined
- Aug 6, 2007
- Messages
- 67
- Reason
- PALS
- Country
- US
- State
- MA
- City
- barnstable
I signed on to this forum less than a year ago when my husband was diagnosed. I found this forum scary and have not been back until now.
My beloved husband began displaying symptoms in about April 2007. He had a draggy foot and was becoming weaker. He was an active 71. He had some breathing problems. We went through many months of excrutiating mis-diagnoses. He was diagnosed in August with a 2nd opinion in September.
My husband was a very active man, always building, working on his house and yard - a loving husband and dad. He gradually could do little mainly due to breathing and weakness. He lost 50 pounds (muscle). He was an avid reader, historian and was writing a book.
By spring my husband was pretty much confined to home based on panic attacks, weakness, loss of breath. Our daughter was going on an exchange to Spain and my husband insisted on keeping our plans to go to Mexico which we did every spring. He knew he would be in a wheelchair and like a trooper he went and we had a nice trip although somewhat bittersweet. Wheelchair, B pap, and good attitude.
We returned on a Sunday. On Monday my husband rcvd. copies of his published memoirs. He read emails from our daughter in Spain. He called old friends about his book. On Tuesday after our peaceful cocktail time he passed away. Very suddenly. The doctors think probably pulmonary embolism but they don't know. Possibly brought on by the plane trip but my husband did tell a friend in Mexico that he knew he would go soon. He gave me that trip as an amazing gift. The day he died he told me he would not be walking much longer and that he thought he would die in his sleep. He would have absolutely hated not being able to walk and having to depend on me.. We had gone through a week in Mexico with him in a wheelchair and that was part of his sacrifice to spend a week together that will always be in my memory. He wanted me to remember him on a beach in Mexico rather than on machines at home.
For those of you who are going through this agonizing disease, my prayers are with you. There is no answer as to what will happen next. Live each day to its fullest. Savor every moment with your loved one. Each day is part of the journey.
My beloved husband began displaying symptoms in about April 2007. He had a draggy foot and was becoming weaker. He was an active 71. He had some breathing problems. We went through many months of excrutiating mis-diagnoses. He was diagnosed in August with a 2nd opinion in September.
My husband was a very active man, always building, working on his house and yard - a loving husband and dad. He gradually could do little mainly due to breathing and weakness. He lost 50 pounds (muscle). He was an avid reader, historian and was writing a book.
By spring my husband was pretty much confined to home based on panic attacks, weakness, loss of breath. Our daughter was going on an exchange to Spain and my husband insisted on keeping our plans to go to Mexico which we did every spring. He knew he would be in a wheelchair and like a trooper he went and we had a nice trip although somewhat bittersweet. Wheelchair, B pap, and good attitude.
We returned on a Sunday. On Monday my husband rcvd. copies of his published memoirs. He read emails from our daughter in Spain. He called old friends about his book. On Tuesday after our peaceful cocktail time he passed away. Very suddenly. The doctors think probably pulmonary embolism but they don't know. Possibly brought on by the plane trip but my husband did tell a friend in Mexico that he knew he would go soon. He gave me that trip as an amazing gift. The day he died he told me he would not be walking much longer and that he thought he would die in his sleep. He would have absolutely hated not being able to walk and having to depend on me.. We had gone through a week in Mexico with him in a wheelchair and that was part of his sacrifice to spend a week together that will always be in my memory. He wanted me to remember him on a beach in Mexico rather than on machines at home.
For those of you who are going through this agonizing disease, my prayers are with you. There is no answer as to what will happen next. Live each day to its fullest. Savor every moment with your loved one. Each day is part of the journey.