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Melody's daughter

New member
Joined
Sep 4, 2008
Messages
1
Reason
Loved one DX
Country
US
State
TN
City
Knoxville
My mom was diagnosed with ALS in June of 2008. The disease has progressed much quicker than any of expected. I'm sitting in my parent's living room waiting for her to leave us. We had a really good week about two weeks ago. Family came to visit, we went for a boat ride, she talked a lot, we were happy. But, ALS snuck up on us and reared it's ugly head. My mom has taken a turn for the worse. Hospice told us yesterday she only has a few days. I'm praying that it's less than that. I know that may sound horrible - but this disease is awful and NO ONE should have to suffer. I know my mom is comfortable with the medications, but the person sitting in that bed gasping for air staring out into space - that is not my mom. I think my mom left a long time ago. I've never posted here before - but just needed to share how I was feeling this evening. I'm sad that I'll never have a phone conversation, a hug, kiss, fight, or a little laugh now and again. But, I am at peace knowing that my mother is no longer trapped in her own body. I'm also thankful that we were given some time to say our goodbyes.

Mom....I will forever miss you!

Always,
Christer :)
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,543
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
Christer- I am so sorry about your Mom. I can hear your love for her in your post. I hope she stays comfortable and I hope you have loved ones nearby.

We are losing one or two PALS this week, it seems. Always sad when that happens. Please let us know how she is doing whenever you have a minute to post. Hugs, Cindy
 

msde302

Active member
Joined
Jan 5, 2008
Messages
77
Reason
CALS
Country
US
State
MN
City
St. Paul
Christer-

I lost my own mom to ALS in June. The last days are such a haze. You and your mom are in my thoughts.

Kaija
 

laurel

Very helpful member
Joined
Jul 19, 2007
Messages
1,431
Reason
DX UMND/PLS
Diagnosis
07/2007
Country
CA
State
BC
City
Vancouver
Dear Christer,
It is so heart breaking reading your words as the image you paint is so painful and honest. I am saying a prayer for your mom Melody and you and your family. May God give you all peace.
Laurel
 

olly

Extremely helpful member
Joined
Jan 10, 2008
Messages
2,732
Reason
PALS
Diagnosis
11/2007
Country
uk
State
uk
City
uk
christer

i am so sorry for the pain you are going through right now.
i hope your mum is comfortable and when the time comes it is so peacefull.
you,your mum and family are all in my thoughts and prayers.
caroline
 

lizzy

Member
Joined
Jul 29, 2008
Messages
11
Country
CA
State
ontario
City
london
christer, it is obvious how much you love and support your mum. I think you have a wonderful attitude about the situation and see that she will be at peace. It's not horrible for you to wish it happen sooner than later, none of us wants to see our loved ones suffer from this disease. Peace to you, I'm glad you found this site as a place to express your love for your dear mum and to get you through this time. I wish you and your family comfort.
 
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