Lilacs53
Distinguished member
- Joined
- Oct 13, 2014
- Messages
- 107
- Reason
- PALS
- Diagnosis
- 09/2014
- Country
- US
- State
- AZ
- City
- Buckeye
Rob, found out today that his girlfriend has Huntington's disease, which to me after studying about it, sounds worse than ALS. They have only been dating for a short time and today was his day off work, so his girlfriend took the day off so that they could spend the whole day together. She has two teenage children from a previous marriage that has been tested and is carrying the gene too. She told Rob some stuff about the disease and then asked him to study it some more and to decide if he wants their relationship to continue. That she will understand if he chooses not to. He likes this girl a lot and was so excited to get out the door to see her today.
Isn't me having this horrible disease of ALS enough? Why does my son have to go thru this? Why does she have to have Huntington's disease and her children also...why? It breaks my heart and I don't know how to help my son with this. I wish there was a crying smiley, because that's what I feel like right now.
I'm sorry to burden you all with this, but I didn't know where else to turn. From my understanding there is no cure for this disease just like ALS. I hate all of these stinken diseases they still everything from us.
Isn't me having this horrible disease of ALS enough? Why does my son have to go thru this? Why does she have to have Huntington's disease and her children also...why? It breaks my heart and I don't know how to help my son with this. I wish there was a crying smiley, because that's what I feel like right now.
I'm sorry to burden you all with this, but I didn't know where else to turn. From my understanding there is no cure for this disease just like ALS. I hate all of these stinken diseases they still everything from us.