- Oct 4, 2008
- Loved one DX
This is my first post, or "thread" or whatever they call it. I don't even know what a "thread" is! Oh well, I've just read and read and read all the posts and thought I'd finally share some thoughts. My sweet mother was diagnosed with ALS on July 15, 2008. She had suffered for over two years while her quack of a doctor told her she needed back surgery (and she had it!) only to never get better. She is in the final stages, and has been in a Hospice In-Patient unit for just over 4 weeks. To say I am heartbroken is an understatement. I am so sad, and mad, and nauseated and tired and guilty and the list goes on. I hate ALS, it is the meanest disease I have ever heard of. At least with cancer (most times) you can TRY to fight it with chemo and other meds. Did I mention how mad I am? My mama loved to stay busy, walked 6 miles every day (up until 2 yrs ago) was the best cook in the world, loved her family and loved life. She only cared about our family, and still worries about us. She has always hated being in the bed - never one to sleep in late or take a nap. She was smart, independent, stubborn and resilant - all great qualities in life, but those characteristics make for a very BAD patient. Even with all the morphine and drugs, she still begs to get out of the bed. Watching her suffer has been agonizing. I'm not normally a negative person but this experience has proven to almost be more than I can take.