EGBAR
Distinguished member
- Joined
- Jun 8, 2011
- Messages
- 173
- Reason
- PALS
- Diagnosis
- 06/2011
- Country
- US
- State
- FL
- City
- Niceville
Hello everyone! Although I have been watching and reading your comments for a few months I didn’t actually join until yesterday. I wasn’t able to post anything yesterday due to my high anxiety of being diagnosed on June 7th the day before. As with many people I have been doing research and driving myself crazy trying to figure out what was going on. I think I realized I did have ALS when I discovered that I was born on Lou Gehrig’s birthday June 19th. That was 2 months ago I discovered that.
I had the most surreal day of my life yesterday. I woke up at 3 in a panic attack, my mind was racing. I haven’t told my aging parents who live miles and states away or our daughter who is in college in AZ. I run my wives physicians office so I went to work, the Electronic Medical Records system we use was down most of the day, which made it difficult for us to catch up from just returning from 2 days at the Mayo clinic in Jacksonville. I tried to stay busy; not very successful I was very anxious.
I headed home feeling very depressed, thinking about dying and how absolutely horrible this disease is and how I don’t want to put my wife through this, approaching a pretty low point and there was a very serious motor vehicle accident in the northbound lane, traffic stopped in both directions I was in the southbound lane. The life flight landed in the northbound lane across from my truck. Everyone was out of their vehicles watching this terrible scene. And it hit me, this person that was being taken unto the life flight probably woke up this morning thinking he or she was going to live another 30, 40, 50 or more years who knows. It got things into perspective very quick.
I then went to pick up the new medication I was prescribed at the Mayo clinic at CVS. I was told that the medication needs to have a pre-authorization from the insurance and should be about 2 days. I asked how much to pay for it and 30 tablets were $533.00. As I walked away from the Pharmacy empty handed I decided to buy a York Peppermint patty, I like them. As I was pulling out change the clerk asked me in a matter-of-fact way do you want to give a dollar to help support ALS research. I couldn’t believe it. I reached in my pocket and pulled out a $20 and said “yes I want to donate $20.00; believe it or not I was just diagnosed yesterday with ALS”. As she rang them up I looked and then noticed all the little gray paper squares where people have donated before me.
I don’t know where this horrible disease is going to take me, but I will not let it define me. I am very sorry that anyone ever has to join this community but I am here and I will do all I can to help anyone with what they need.
Thank you all for your unknowing support so far over the last few months.
I had the most surreal day of my life yesterday. I woke up at 3 in a panic attack, my mind was racing. I haven’t told my aging parents who live miles and states away or our daughter who is in college in AZ. I run my wives physicians office so I went to work, the Electronic Medical Records system we use was down most of the day, which made it difficult for us to catch up from just returning from 2 days at the Mayo clinic in Jacksonville. I tried to stay busy; not very successful I was very anxious.
I headed home feeling very depressed, thinking about dying and how absolutely horrible this disease is and how I don’t want to put my wife through this, approaching a pretty low point and there was a very serious motor vehicle accident in the northbound lane, traffic stopped in both directions I was in the southbound lane. The life flight landed in the northbound lane across from my truck. Everyone was out of their vehicles watching this terrible scene. And it hit me, this person that was being taken unto the life flight probably woke up this morning thinking he or she was going to live another 30, 40, 50 or more years who knows. It got things into perspective very quick.
I then went to pick up the new medication I was prescribed at the Mayo clinic at CVS. I was told that the medication needs to have a pre-authorization from the insurance and should be about 2 days. I asked how much to pay for it and 30 tablets were $533.00. As I walked away from the Pharmacy empty handed I decided to buy a York Peppermint patty, I like them. As I was pulling out change the clerk asked me in a matter-of-fact way do you want to give a dollar to help support ALS research. I couldn’t believe it. I reached in my pocket and pulled out a $20 and said “yes I want to donate $20.00; believe it or not I was just diagnosed yesterday with ALS”. As she rang them up I looked and then noticed all the little gray paper squares where people have donated before me.
I don’t know where this horrible disease is going to take me, but I will not let it define me. I am very sorry that anyone ever has to join this community but I am here and I will do all I can to help anyone with what they need.
Thank you all for your unknowing support so far over the last few months.