SpeedyMarie
Active member
- Joined
- May 24, 2019
- Messages
- 38
- Reason
- PALS
- Diagnosis
- 08/2019
- Country
- US
- State
- TX
- City
- Houston
Hello everyone Merry Christmas and Happy New Year’s!
Well I made it through Christmas intact very sore. I’m the Aunt of 20 nieces and nephews and Mom to 2 now 3 with my son in law. This year I had to be creative for gifts make chocolates, brittle, and bath bombs. On top of a nephew in distress had to pull together an army to help a disabled young Vet. I realized how much this disease has sucked my life force. I can no longer use a glue gun or hear gun safely. My husband helped me lift the hot sugar out of the oven. I may not be able to do the treats again my hands have been killing me for days. After helping move a donated couch I couldn’t walk well. Called in more help after that. It’s beautiful how people will step in to lift other folks up. Funny how before this you can just count on doing things I’m learning how to live again or die slowly and really live while I can . We had a beautiful Christmas I feel blessed the realization this could be my last hit me deeply. I’ve been gifted a trip to Europe for Christmas how awesome. This New Year my goal is to take a lot of pictures and make the voice tapes for my kids.
Well I made it through Christmas intact very sore. I’m the Aunt of 20 nieces and nephews and Mom to 2 now 3 with my son in law. This year I had to be creative for gifts make chocolates, brittle, and bath bombs. On top of a nephew in distress had to pull together an army to help a disabled young Vet. I realized how much this disease has sucked my life force. I can no longer use a glue gun or hear gun safely. My husband helped me lift the hot sugar out of the oven. I may not be able to do the treats again my hands have been killing me for days. After helping move a donated couch I couldn’t walk well. Called in more help after that. It’s beautiful how people will step in to lift other folks up. Funny how before this you can just count on doing things I’m learning how to live again or die slowly and really live while I can . We had a beautiful Christmas I feel blessed the realization this could be my last hit me deeply. I’ve been gifted a trip to Europe for Christmas how awesome. This New Year my goal is to take a lot of pictures and make the voice tapes for my kids.