Miav123
Active member
- Joined
- Aug 26, 2016
- Messages
- 47
- Reason
- Lost a loved one
- Diagnosis
- 08/2016
- Country
- CA
- State
- Ontario
- City
- Aurora
My father passed away last Wednesday surrounded by his family. Despite all the misery that ALS inflicted on his body, his last few days were very peaceful.
His condition took a drastic downturn in November, after a couple of cycles on Edaravone. We will never know if this was a cause of his decline. He went from walking without a walker to needing a wheelchair in one day! The list of abilities he lost grew from there. We thought he wouldn't make it to Christmas because he started coughing so bad. Somehow he pulled through and even got a little better over the holidays.
After New Years, I think he decided he had enough suffering. Five days before he passed, he fell asleep and only woke up on that last day to look at all of us one last time. It was truly beautiful.
I miss him so much. Our lives were so consumed with helping him these last couple of months, that I even miss ALS as weird as that sounds. I miss picking him up for transfers, getting him in bed, feeding him, putting on his BiPap, rubbing his feet. And of course I will always miss my amazing pre ALS dad...a man who would do anything for his family.
Thank you to everyone on this board for your support and for answering all of my questions along the way.
His condition took a drastic downturn in November, after a couple of cycles on Edaravone. We will never know if this was a cause of his decline. He went from walking without a walker to needing a wheelchair in one day! The list of abilities he lost grew from there. We thought he wouldn't make it to Christmas because he started coughing so bad. Somehow he pulled through and even got a little better over the holidays.
After New Years, I think he decided he had enough suffering. Five days before he passed, he fell asleep and only woke up on that last day to look at all of us one last time. It was truly beautiful.
I miss him so much. Our lives were so consumed with helping him these last couple of months, that I even miss ALS as weird as that sounds. I miss picking him up for transfers, getting him in bed, feeding him, putting on his BiPap, rubbing his feet. And of course I will always miss my amazing pre ALS dad...a man who would do anything for his family.
Thank you to everyone on this board for your support and for answering all of my questions along the way.