• Memoriam wall
    • We've created a memoriam wall to remember our friends
    • If you know someone that battled ALS, please add them here
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Miav123

Active member
Joined
Aug 26, 2016
Messages
47
Reason
Lost a loved one
Diagnosis
08/2016
Country
CA
State
Ontario
City
Aurora
My father passed away last Wednesday surrounded by his family. Despite all the misery that ALS inflicted on his body, his last few days were very peaceful.

His condition took a drastic downturn in November, after a couple of cycles on Edaravone. We will never know if this was a cause of his decline. He went from walking without a walker to needing a wheelchair in one day! The list of abilities he lost grew from there. We thought he wouldn't make it to Christmas because he started coughing so bad. Somehow he pulled through and even got a little better over the holidays.
After New Years, I think he decided he had enough suffering. Five days before he passed, he fell asleep and only woke up on that last day to look at all of us one last time. It was truly beautiful.

I miss him so much. Our lives were so consumed with helping him these last couple of months, that I even miss ALS as weird as that sounds. I miss picking him up for transfers, getting him in bed, feeding him, putting on his BiPap, rubbing his feet. And of course I will always miss my amazing pre ALS dad...a man who would do anything for his family.

Thank you to everyone on this board for your support and for answering all of my questions along the way.
 

lgelb

Forum Supporter
Moderator
Joined
Nov 5, 2009
Messages
8,329
Reason
Lost a loved one
Diagnosis
00/0000
Country
US
State
WA
City
Seattle
I'm very sorry to hear about your dad, but happy to know that he was at peace and surrounded by your love. I do understand what you miss, the dad who cared for you and the dad you cared for. He was your dad throughout it all. Much peace and strength to you and your family.

Best,
Laurie
 

KarenNWendyn

Forum Supporter
Moderator
Joined
Jul 29, 2017
Messages
3,648
Reason
PALS
Diagnosis
07/2017
Country
US
State
OR
City
Southern Oregon
I’m sorry for your loss. Your love for him is so apparent. Best wishes to you and your family.
 

Narrowminded

Extremely helpful member
Joined
Apr 30, 2016
Messages
2,608
Reason
Lost a loved one
Diagnosis
07/2007
Country
US
State
PA
City
Pittsburgh
Miav i am so very sorry for your loss. I’m praying peace for you as you go forward.

Hugs,

Sue
 

affected

Guru status reached
Joined
Apr 26, 2013
Messages
12,469
Reason
Lost a loved one
Diagnosis
05/2013
Country
OZ
State
AU
City
lala land
I am so truly very sorry for the loss of your father xxx
 

soonerwife

Very helpful member
Joined
Mar 16, 2016
Messages
1,565
Reason
Lost a loved one
Diagnosis
10/2015
Country
US
State
OK
City
Cleveland
I am so sorry for your loss. May peace be with you and your family.
 

ShiftKicker

Moderator
Joined
Mar 16, 2015
Messages
2,990
Reason
DX UMND/PLS
Diagnosis
06/2015
Country
CA
State
BC
City
Vancouver
I am so sorry for the loss of your dad. I am so glad he was surrounded by family and it was a peaceful goodbye. I wish you and your family well. It must have been hard to see him struggling in the last few months.
 

pittsburghgal

Senior member
Joined
Jan 7, 2016
Messages
542
Reason
Lost a loved one
Diagnosis
11/2011
Country
US
State
PA
City
Pittsburgh
Miav, I am so sorry for your loss of your father. You and your family are in my thoughts and prayers.

Sharon
 

Angiegal

Distinguished member
Joined
Feb 15, 2017
Messages
301
Reason
PALS
Diagnosis
09/2015
Country
CA
State
Ontario
City
Kitchener
Oh Miav,
I am so sorry for your loss.

Angie
 

Jrzygrl

Senior member
Joined
Feb 14, 2017
Messages
619
Reason
Lost a loved one
Diagnosis
08/2014
Country
US
State
NJ
City
X
So very sorry. I'm glad you had that last beautiful moment with him.

Wishing you peace.
 

chally

Very helpful member
Joined
Apr 23, 2015
Messages
1,255
Reason
PALS
Diagnosis
02/2015
Country
US
State
wv.
City
renick
Sorry for your loss.
Sounds like a peaceful way to go.
Sending good thoughts your way
 

adrivtham

Distinguished member
Joined
Feb 23, 2016
Messages
116
Reason
Lost a loved one
Diagnosis
02/2016
Country
US
State
texas
City
katy
I am very sorry for your loss. Hugs to you and your family
 

Erika

Distinguished member
Joined
Sep 21, 2016
Messages
175
Reason
CALS
Diagnosis
06/2016
Country
US
State
Arizona
City
Mesa
Miav123, I'm sorry for your father's loss. I too miss the ALS days ...so weird. Maybe because we could show them our love by caring for them, or maybe because we could at least touch and talk to them.
Hope great memories of him and your time together come to mind if/when tough days come.
May he rest in peace.
-Erika
 

frankb

Senior member
Joined
Jun 8, 2011
Messages
547
Reason
PALS
Diagnosis
10/2010
Country
US
State
Georgia
City
Sandy Springs
condolences to your family. i was touched deeply by your rememberances. peace be with you and your family.
 
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