TRACEY'S MOM
New member
- Joined
- Jun 28, 2011
- Messages
- 7
- Reason
- PALS
- Country
- Uni
- State
- OH
- City
- Cleveland
I may have only had the opportunity to post on this site once or twice before my daughter's battle escalated. Tracey was in the loving care of Hospice when she died on Oct 11th at 11 a.m. She was only 40. Her husband George and I never left her while she was on her journey in the hospice facility. I kept remembering the movie Steel Magnolias, when the daughter died, the mom said that it was right that she was with her daughter at the end since she was the one who brought her into the world. I get that. My hope is that in some way Tracey was a part of the cure. She tried lithium and rilutek at the beginning of her illness and earlier this year she had a pacer device installed along with a peg tube. It was the first time Dr. Onders performed this type of surgery with this particular peg tube. In addition to George, Tracey left behind three beautiful children, a sister and two brothers, and so many, many, relatives and friends who loved her deeply.
Her ALS was extremely painful for her and toward the end she was nauseated quite a bit. She would tell me she was miserable. When it was time to go to hospice, she didn't even wait for the ambulance to take her, she powered her wheel chair and insisted to leave immediately. But she kept saying she was not going to die. She fought the good fight until the end.
To all of you who have experienced a loss like mine, I am so sorry. For those of you who continue to live with ALS, my prayer is that you never give up hope and live to experience the cure that we know is coming one day.
Her ALS was extremely painful for her and toward the end she was nauseated quite a bit. She would tell me she was miserable. When it was time to go to hospice, she didn't even wait for the ambulance to take her, she powered her wheel chair and insisted to leave immediately. But she kept saying she was not going to die. She fought the good fight until the end.
To all of you who have experienced a loss like mine, I am so sorry. For those of you who continue to live with ALS, my prayer is that you never give up hope and live to experience the cure that we know is coming one day.