• Memoriam wall
    • We've created a memoriam wall to remember our friends
    • If you know someone that battled ALS, please add them here
Status
Not open for further replies.

TRACEY'S MOM

New member
Joined
Jun 28, 2011
Messages
7
Reason
PALS
Country
Uni
State
OH
City
Cleveland
I may have only had the opportunity to post on this site once or twice before my daughter's battle escalated. Tracey was in the loving care of Hospice when she died on Oct 11th at 11 a.m. She was only 40. Her husband George and I never left her while she was on her journey in the hospice facility. I kept remembering the movie Steel Magnolias, when the daughter died, the mom said that it was right that she was with her daughter at the end since she was the one who brought her into the world. I get that. My hope is that in some way Tracey was a part of the cure. She tried lithium and rilutek at the beginning of her illness and earlier this year she had a pacer device installed along with a peg tube. It was the first time Dr. Onders performed this type of surgery with this particular peg tube. In addition to George, Tracey left behind three beautiful children, a sister and two brothers, and so many, many, relatives and friends who loved her deeply.
Her ALS was extremely painful for her and toward the end she was nauseated quite a bit. She would tell me she was miserable. When it was time to go to hospice, she didn't even wait for the ambulance to take her, she powered her wheel chair and insisted to leave immediately. But she kept saying she was not going to die. She fought the good fight until the end.
To all of you who have experienced a loss like mine, I am so sorry. For those of you who continue to live with ALS, my prayer is that you never give up hope and live to experience the cure that we know is coming one day.
 

rcharlton

Moderator emeritus
Joined
Jun 20, 2005
Messages
610
Reason
PALS
Diagnosis
11/2005
Country
CA
State
Ontario
City
Toronto
I'm very sorry to hear about your daughter.

She sounds like a real fighter.

Peace to your family.
 

chriss

Active member
Joined
Apr 30, 2010
Messages
77
Diagnosis
01/2009
Country
AU
State
victoria
City
greenvale
I am so sorry for your loss. I am sure you being with her all throughout until the end was a big comfort to her.

My thoughts are with you and your family

Chris
 

joni51

Senior member
Joined
Sep 8, 2010
Messages
985
Reason
Lost a loved one
Diagnosis
10/2010
Country
US
State
Al
City
Valley
I am very sorry for the loss of your daughter, for all of you..
 

Sequoia

Senior member
Joined
Sep 19, 2010
Messages
846
Reason
PALS
Diagnosis
08/2010
Country
US
State
Washington
City
Seattle
A courageous fight, a loving mother.....Bless you for all that you did for Tracy! It gives me courage to go on, thank you!
 

Ms. Pie

Very helpful member
Joined
Mar 26, 2011
Messages
1,794
Reason
PALS
Diagnosis
10/2010
Country
US
State
CO
City
Colorado
Too young, too fast. It just doesn't seem fair. I'm so sorry for the loss of your daughter. I wish you all peace of mind and heart. I wish you all Gods's comfort and protection.
 

KissJ

Distinguished member
Joined
Jul 6, 2011
Messages
376
Reason
Loved one DX
Diagnosis
05/2011
Country
US
State
Pennsylvania
City
Greensburg
I'm so sorry for your loss! Thank you for posting. She will have peace now. And, be free of the horrible ALS Monster! God Bless!
 

Miss

Very helpful member
Joined
Apr 11, 2010
Messages
1,757
Reason
Lost a loved one
Diagnosis
04/2010
Country
US
State
In the Land of Cotton
City
Way Down South
I am thinking of you and your family and praying that you will find peace. I am so sorry that Tracy's battle with ALS left her in pain. this disease is hard enough without that.
 

susanf

Senior member
Joined
May 26, 2011
Messages
647
Reason
PALS
Diagnosis
06/2011
Country
US
State
fl
City
Palm Harbor
My deepest sympathy. You are a loving mother.
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
So sorry for your loss.

AL.
 

notgivnup

Senior member
Joined
Nov 8, 2010
Messages
815
Reason
PALS
Diagnosis
11/2010
Country
OS
State
Darkside of Moon
City
country
So very sorry for the loss of your daughter. My heartfelt prayers go out to you and the family and friends, what a wonderful mother you are. Praying for Peace and Comfort for all of you at this difficult time.
 

cervus

Senior member
Joined
Mar 18, 2011
Messages
923
Reason
Lost a loved one
Diagnosis
11/2010
Country
CA
State
AB
City
Leduc County
I am so sorry for your loss. Again, I am deeply saddened to hear that we have lost another good, good person to ALS. Sending you warmth, strength and peace. Yasmin
 

KeeKer

Senior member
Joined
Nov 17, 2008
Messages
830
Reason
Loved one DX
Diagnosis
08/2007
Country
CA
State
SK
City
Theodore
so sorry for your loss. It must be very hard to lose a child. May your memories of her help you through the difficult times to come.
 

brooksea

Legendary member
Joined
Sep 27, 2006
Messages
5,171
Reason
Other
Country
HM
I'm so very sorry, Tracey's mom! Your daughter was obviously a real warrior. My heart goes out to all of your family...
 

Zaphoon

Extremely helpful member
Joined
Aug 2, 2008
Messages
2,855
Reason
DX UMND/PLS
Diagnosis
08/2011
Country
US
State
Missouri
City
Springfield
Tracey's Mom, Thanks for all you did for Tracy while she fought on! My condolences go out to all of the family!
 
Last edited:
Status
Not open for further replies.
Top