daddygirlmel
New member
- Joined
- Apr 25, 2007
- Messages
- 2
- Reason
- Loved one DX
- Country
- US
- State
- ohio
- City
- fairfield
Hi everyone, my name is Melissa. I am 31 yrs old. My dad has been sick for about 6 years and he has not told me anything about it. He thinks he is protecting his little girl. Recently he has gone down hill drastically. I finally pounded enough family members to finally find out what it is...ALS. I do not know what to expect or look for with the advanced progression of this disease. All I know is he is on oxycottin, morphine and lyrica and he said the only thing left is the morphine drip. He can not sleep at night because the pain is so bad. He is selling things which tells me it is getting close to time. He has been having swallowing problems for about 8 months. He hides his meds knowing I am internet savvy and will discover things. My dad is my world and I understand why he chose not to tell me anything. But it is more devistating NOT KNOWING! He had his own construction company and always had a buff body but now when I hug him it is like a 90 yrs old man. Skin and bones. I have come to grips with his illness but not knowing how much time he has and what warning signs to look for is killing me. I am a daddy's girl, true to the heart but I need to know what to expect. What the warning signs are. How to help. What I can do to comfort him. How do I let him know his little girl and grand babies will be ok without him on this earth. If anyone has any info or suggestions please email me at [email protected] with ALS in the subject line. I do NOT care if I get 5000 emails a day... I need to know how I can help my dad, what to expect and look for. I do not know how to navigate around this website, I just found it tonight. So please send me email at the address shown above.
Also, if anyone has this disease and has not told anyone about it, please listen! You might think you are doing the right thing trying to protect your loved ones... but all it does is cause confusion and more pain.
Thanks to anyone who can help me with this. May God bless anyone with this disease and their families.
Mel
Also, if anyone has this disease and has not told anyone about it, please listen! You might think you are doing the right thing trying to protect your loved ones... but all it does is cause confusion and more pain.
Thanks to anyone who can help me with this. May God bless anyone with this disease and their families.
Mel