NotMyDad
Active member
- Joined
- Sep 1, 2016
- Messages
- 70
- Reason
- Lost a loved one
- Diagnosis
- 11/2016
- Country
- US
- State
- VA
- City
- Woodbridge
He wakes up in the middle of the night choking on saliva and nothing helps. I mean - the only thing he tries is cough it out, and of course this doesn't help. His doctor - an anestesiologist with no experience with bulbar ALS, doesn't have any advice.
My dad suffers so much he now often says he wants to die - because of problems with saliva/mucus or whatever is stuck in there down his throat.
Can anything help?
He tried his cough assist a few times, but I think he had the impression it made things worse.
He refuses a feeding tube and still eats blended food - can this also be the cause of what's happening?
Or the fact that he is probably dehydrated because he has horrible trouble getting any fluids in...
Please help. I feel so totally hopeless (I'm far away from him).
My dad suffers so much he now often says he wants to die - because of problems with saliva/mucus or whatever is stuck in there down his throat.
Can anything help?
He tried his cough assist a few times, but I think he had the impression it made things worse.
He refuses a feeding tube and still eats blended food - can this also be the cause of what's happening?
Or the fact that he is probably dehydrated because he has horrible trouble getting any fluids in...
Please help. I feel so totally hopeless (I'm far away from him).
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