Emily79
New member
- Joined
- Jul 20, 2008
- Messages
- 3
- Reason
- Loved one DX
- Country
- US
- State
- Ohio
- City
- Hudson
Hello everyone,
I just joined alsforums in the hope of getting some advice and comfort during this very difficult time. My dad was diagnosed with ALS in September of 2004. Over the past few weeks he has gotten a lot worse. He has stopped eating; can barely drink; and now cannot swallow pills. (He does not have a PEG tube and decided long ago he did not want that, nor does he want any kind of artificial life support). He has not been able to drink any water for the past two days...
He is on hospice and they have been telling us to try and give him his meds in a paste under his tongue. However, this is not working - he just spits it up. My mom called hospice this morning, to let them know we can't get any pain meds in him, and that he is in a lot of pain. Hopefully, they will call back soon and perhaps there is another option (like a patch of some sort?) Hospice was resistent to this idea a few days ago because they want to keep him on methadone for the pain (and that med does not come in a patch form).
My poor dad is so uncomfortable, and in so much pain and he keeps telling us that he wants this all to end. I can't stand to see him suffering like this.
Thanks for listening. We are all wrecks right now. I would love any advice from people who have gone through this before. This is so hard.
Emily
I just joined alsforums in the hope of getting some advice and comfort during this very difficult time. My dad was diagnosed with ALS in September of 2004. Over the past few weeks he has gotten a lot worse. He has stopped eating; can barely drink; and now cannot swallow pills. (He does not have a PEG tube and decided long ago he did not want that, nor does he want any kind of artificial life support). He has not been able to drink any water for the past two days...
He is on hospice and they have been telling us to try and give him his meds in a paste under his tongue. However, this is not working - he just spits it up. My mom called hospice this morning, to let them know we can't get any pain meds in him, and that he is in a lot of pain. Hopefully, they will call back soon and perhaps there is another option (like a patch of some sort?) Hospice was resistent to this idea a few days ago because they want to keep him on methadone for the pain (and that med does not come in a patch form).
My poor dad is so uncomfortable, and in so much pain and he keeps telling us that he wants this all to end. I can't stand to see him suffering like this.
Thanks for listening. We are all wrecks right now. I would love any advice from people who have gone through this before. This is so hard.
Emily