MF4129
Member
- Joined
- Sep 6, 2021
- Messages
- 11
- Reason
- Loved one DX
- Diagnosis
- 00/0000
- Country
- US
- State
- MN
I initially posted back in September under the “could this be als” category regarding concerns I had about my mom and her slurred speech. Unfortunately, my concerns were confirmed (after seeing several neurologists- some who did not seem well versed in MND) and my mother has been diagnosed with MND. She had her 2nd opinion last week at Mayo. Her 1st als specialist diagnosed her with progressive bulbar palsy. Mayo diagnosed likely bulbar als. The reason they haven’t fully committed to bulbar als is that her most recent emg only shows changes on the left side of her tongue and no where else. She has had progressive difficulty with speech and swallowing. It’s been such a anxiety filled, stressful, heartbreaking last several months. I feel emotionally worn out and yet I know it’s just the beginning of the journey.