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My clinical Trial experience

Ulf

New member
Joined
Jun 12, 2019
Messages
1
Reason
DX MND
Diagnosis
08/2018
Country
US
State
CA
Hello Everyone, I wanted to write about my trial experience. I was part of the cytokinetics phase 2 trial. The drug helped me to retain my muscles and increased my strength for the 22 weeks. Sadly afterwards I lost some muscles during flush out period. I'm slow progressing. I'm now on the arimoclomol study. I believe I'm getting the real drug as when I take it my fasciculation die down to like 5 percent. They are involuntary so I don't think placebo effect can cause this. I also feel better when I take it and haven't lost anymore muscles so far.

I also heard from the chief investigator that she talked to the people from Nurown and the FDA wants them to complete the trial.
 
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