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Sammantha

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Joined
Aug 11, 2007
Messages
501
Country
Uni
State
NC
City
Newport
Okay, whenever i get a new twitch in a big muscle it will last for hours! I cant stand it... My right inner thigh near my knee has now started up. When it is new it twitches so hard that an area almost the size of my hand will move. After a few months it will be more fine, not so abrupt. I was enjoying the day fishing with my son and that leg started in and did not stop until the next day! It is so hard to pretend like there is nothing wrong so you can enjoy family time when this piece of muscle is booming. Its like it is taunting me, your muscles are dying your muscles are dying, your muscles are dying............ Can you tell it drives me crazy, anyways how does one treat or cope with this...? ps.. at least now the ones in my face have died down, they still twitch but its not as noticable.
 

PDaddy

Distinguished member
Joined
Jan 8, 2008
Messages
264
Diagnosis
04/2008
Country
US
State
CA
City
Claremont
My arms and hands have been twitching since Jan 08, I bet others have been twitching longer, it's hard to ignore, but what can ya do?
 

fiddleplayer51

Distinguished member
Joined
Mar 24, 2008
Messages
337
Diagnosis
03/2008
Country
US
State
VA
City
Harrisonburg
Hello Sammantha,
I'm so sorry for the horrible stress you're feeling about the relentless twitching; how it completely interferes with time you are trying to spend with your family.
It's funny-just before opening your post up I was sitting here with tears just streaming down my face thinking about my PALS husband in the next room trying to do his usual stretching exercises that he's always done. He is declining so fast now and I was just thinking how he's in there slowly being taken away.
Then I opened up your post and read your words. It is all so sad and I'm so sorry for what you are struggling with. I hope you gather courage from your visits here to this forum where so many are suffering in their own ways with this life-robbing disease, although apparently you have not been diagnosed with ALS?
I just want you to know that I'm thinking about you as you struggle through whatever it is. I will keep you in my thoughts and hope you find some comfort and a refuge from your relentless twitches.
Take care and all the best,
Jane
 

rose

Extremely helpful member
Joined
Mar 29, 2008
Messages
2,879
Reason
DX MND
Diagnosis
7/2008
Country
US
State
Maryland
City
Anytown
HI Sam, I too just wanted to let you know I've been thinking about you. No words of wisdom though.... big (((hugs)))
 
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