dottie
New member
- Joined
- Oct 30, 2008
- Messages
- 5
- Reason
- Loved one DX
- Diagnosis
- 11/2005
- Country
- US
- State
- mass
- City
- revere
my love passed after 5 yrs with als, he was lucky he could still eat and talk, but could not more at all. i would watch over him day and night and never left his side, a week before his passing he had a dream that the light went out and he couldnt breathe he seen a bright light and was moving up to it and he notice his hands were no longer crippled but the light got smaller and smaller and close on him, bobby was on a vipap 24 a dayhe couldnt breathe without it, i was allways scared of the light going out and called the equiment place to see if a bipap could have a bettery backup the answer was no its not condiserd a lift support, i did get a bettery back but it was manual. bobby was sleeping that night with me right next to him, my son in law whos upstairs ran to tell me the lights were out it was 5 in the morning to my shock my beloved was gone, i never heard a sound coming from him and i was sooo sry i dint no the light went out, the reason was someone ran into a transfomer poll at 3 in the morning, he went so peacefull, i writing this to tell every one to advocate for a battery built in bypap, untill this time at least get light for a backup alarm system . my heart will be forever his. and all of you will be forever in my prayers , he died the way he told went to the light peacefull god bless you all love dottie