DebraJean14
Member
- Joined
- Sep 24, 2014
- Messages
- 17
- Reason
- CALS
- Diagnosis
- 09/2014
- Country
- US
- State
- NY
- City
- Long Island, NY
Good Morning to all!
Thank you for your replies! I have not been on because my BF is in the anger stage of this process and It seems I am the enemy. He is mean. starts fights, is drinking way too much, refuses to take anti-depressants or get counseling. I did call his neuro about this because this is NOT my BF; yes, he has a hot temper, but NOT every second of everyday. The neuro explained to me that he sees this all the time with the sig others, and that I am the reminder of how life was good, what could have been and that he is leaving me..... I am trying to be strong and kind, but the BF words and actions are hurting me and bad... I am PRAYING and hoping this stage ends soon...
MY BF's neuro also stated to me that BF's ALs is moderate. I asked what that meant. Neuro said, "well if BF was fine 2 years ago, and now BF is moderate (in the middle of ALS process) then you can tell what the next two years will bring".... ANd yes, I am realizing that Neuro is NOT God, and that the experts and Columbia will prob have more info.
I still have alot of hope that it is BF injuries that are making him so miserable and that SOMETHING can be done....if not surgery then maybe injections into the pressure points, chiro, massage therapy, and more....
We did get into Columbia, finally, We go tomorrow 10/17..... I hear that they will exam him, go over all test results, maybe do another test or two and tell us their opinion, as to if they agree that is def ALS. OF course I am praying that it is NOT, but I hear that IF IT DEF IS, then the ALS experts will steer us to the ALS foundation and there will be a world of a little hope, as far as, counseling for him and me...., therapies, meds, and more.....
He has NOT been the 'same inside" since the last test, the EMG, on 9/11 and is just angry all the time, wants to do nothing, is always screaming and cursing. I miss my sweetheart, and hoping they can talk him into counseling..etc.. I pray....
Thank you for your replies! I have not been on because my BF is in the anger stage of this process and It seems I am the enemy. He is mean. starts fights, is drinking way too much, refuses to take anti-depressants or get counseling. I did call his neuro about this because this is NOT my BF; yes, he has a hot temper, but NOT every second of everyday. The neuro explained to me that he sees this all the time with the sig others, and that I am the reminder of how life was good, what could have been and that he is leaving me..... I am trying to be strong and kind, but the BF words and actions are hurting me and bad... I am PRAYING and hoping this stage ends soon...
MY BF's neuro also stated to me that BF's ALs is moderate. I asked what that meant. Neuro said, "well if BF was fine 2 years ago, and now BF is moderate (in the middle of ALS process) then you can tell what the next two years will bring".... ANd yes, I am realizing that Neuro is NOT God, and that the experts and Columbia will prob have more info.
I still have alot of hope that it is BF injuries that are making him so miserable and that SOMETHING can be done....if not surgery then maybe injections into the pressure points, chiro, massage therapy, and more....
We did get into Columbia, finally, We go tomorrow 10/17..... I hear that they will exam him, go over all test results, maybe do another test or two and tell us their opinion, as to if they agree that is def ALS. OF course I am praying that it is NOT, but I hear that IF IT DEF IS, then the ALS experts will steer us to the ALS foundation and there will be a world of a little hope, as far as, counseling for him and me...., therapies, meds, and more.....
He has NOT been the 'same inside" since the last test, the EMG, on 9/11 and is just angry all the time, wants to do nothing, is always screaming and cursing. I miss my sweetheart, and hoping they can talk him into counseling..etc.. I pray....