- Joined
- Oct 20, 2019
- Messages
- 218
- Reason
- PALS
- Diagnosis
- 01/2020
- Country
- US
- State
- CA
- City
- Los Angeles
Actually my first post said 17 months of continued fasciculations and a dirty EMG, with the doctor listing as possibilities i) ulnar neuropathy, ii) radiculopathy, or iii) the beginning stages of MND. I don't mean to belabor the point, and of course I'm not pointing fingers at anyone. I just feel that as a 49-year male reporting 17 months of continued fasciculations, an abnormal EMG, hand/finger weakness and strained ability to handwrite, I shouldn't have been told that my symptoms did not even "remotely" resemble ALS. I know there are others who have been similarly dismissed who have received a bad diagnosis later, and my only point here is we should be careful in what we say to those who have symptoms that can indicate MND may be in the differential diagnosis, particularly if they are in their 40s or older. Perhaps my issue is with the wording in the stickies - I haven't read those in a while . . . maybe I should re-visit them.
A related point, which ties back to Kevin's original motivation for this threat - I've been thinking for a while that we shouldn't be telling people that pain "points away from ALS". I'm no doctor, but my understanding is that pain doesn't point "to" or "away". Usually it's not there, but sometimes it is, as others have pointed out.
OK, thanks for letting me get that off my chest.
A related point, which ties back to Kevin's original motivation for this threat - I've been thinking for a while that we shouldn't be telling people that pain "points away from ALS". I'm no doctor, but my understanding is that pain doesn't point "to" or "away". Usually it's not there, but sometimes it is, as others have pointed out.
OK, thanks for letting me get that off my chest.