Cara.
New member
- Joined
- Jul 14, 2013
- Messages
- 3
- Reason
- Learn about ALS
- Country
- US
- State
- South Carolina
- City
- Spartanburg
Hello, I'm new to this site, and to ALS..
I'm 35, and been diagnosed with hypothyroidism and hashimotos about 12 years ago, narcolepsy ab 7years ago and last year I was diagnosed with dysautonomia and POTS (postural orthostatic tachycardia syndrome) those are auntonomic nerves system disorders which causes my heart rate to jump 30+bpm when I stand..
Well, about 6months ago I started having muscle twitching and spasms, now there everywhere, normally 5 mins doesn't pass without something twitching or spasming and now I've started jerking, my leg or arm will jerk, like a reflex that I didn't do,, I have muscle weakness, sometime bad, horrible muscle fatigue, sometimes one or two of my muscles will start hurting, badly, it feels like I'm straining it or over working it and won't stop but I won't be doing anything.
My leg went numb a few months ago, like it was asleep but not tingly, I went and seen my neurologist an he did a nerve conduction test on my legs and said I had a delayed response and said it was from a pinched nerve, but it doesn't feel like a pinched nerve,, I told him about my arms but he didn't check or test them,, sometime just using my mouse or driving wears my arms out so bad I can't hold them up, I have to rest them for awhile.
The muscle twitches and spasms are everywhere, face, arms, hands, legs, feet, toes, gut and stomach.. My face hurts all the time and my ent told me about 2 years ago it was because of the muscles in my face being tight, causing pulling and pressure on my face and sinuses making it feel like its my sinuses and lately my face and tmj have been hurting so bad I'll want to cry, heat and hot water seems to help because when I get out of the shower it feels better.. I've also started having problems swallowing, it feels like my muscles just don't close or push the food down all the way, it doesn't happen all the time, but its bad enough to where every time I eat I'm very carful, I'll have to keep swallowing , my muscles get wore out very quickly and need a break, like if I'm folding clothes I can only do a few then my arms have to rest.
I've also started the last few weeks feeling like a hair is tickling my foot or hand but nothing will be there and ill get like a burning zing, like an electrical shock but not strong in my hands and feet.
Does any of this sound like ALS?
And if so is there tests I can ask my dr to do,, I see him Friday,, and I know if I go in there without any info or sound like I know what I'm talking about he'll tell me it's nothing to worry about, it's normal or its just a pinched nerve.
People that deal with ALS daily (y'all) would know more, so if this doesn't sound like it or I shouldn't push it, just let me know and I'll take y'all's advise.
Thanks so much
I'm 35, and been diagnosed with hypothyroidism and hashimotos about 12 years ago, narcolepsy ab 7years ago and last year I was diagnosed with dysautonomia and POTS (postural orthostatic tachycardia syndrome) those are auntonomic nerves system disorders which causes my heart rate to jump 30+bpm when I stand..
Well, about 6months ago I started having muscle twitching and spasms, now there everywhere, normally 5 mins doesn't pass without something twitching or spasming and now I've started jerking, my leg or arm will jerk, like a reflex that I didn't do,, I have muscle weakness, sometime bad, horrible muscle fatigue, sometimes one or two of my muscles will start hurting, badly, it feels like I'm straining it or over working it and won't stop but I won't be doing anything.
My leg went numb a few months ago, like it was asleep but not tingly, I went and seen my neurologist an he did a nerve conduction test on my legs and said I had a delayed response and said it was from a pinched nerve, but it doesn't feel like a pinched nerve,, I told him about my arms but he didn't check or test them,, sometime just using my mouse or driving wears my arms out so bad I can't hold them up, I have to rest them for awhile.
The muscle twitches and spasms are everywhere, face, arms, hands, legs, feet, toes, gut and stomach.. My face hurts all the time and my ent told me about 2 years ago it was because of the muscles in my face being tight, causing pulling and pressure on my face and sinuses making it feel like its my sinuses and lately my face and tmj have been hurting so bad I'll want to cry, heat and hot water seems to help because when I get out of the shower it feels better.. I've also started having problems swallowing, it feels like my muscles just don't close or push the food down all the way, it doesn't happen all the time, but its bad enough to where every time I eat I'm very carful, I'll have to keep swallowing , my muscles get wore out very quickly and need a break, like if I'm folding clothes I can only do a few then my arms have to rest.
I've also started the last few weeks feeling like a hair is tickling my foot or hand but nothing will be there and ill get like a burning zing, like an electrical shock but not strong in my hands and feet.
Does any of this sound like ALS?
And if so is there tests I can ask my dr to do,, I see him Friday,, and I know if I go in there without any info or sound like I know what I'm talking about he'll tell me it's nothing to worry about, it's normal or its just a pinched nerve.
People that deal with ALS daily (y'all) would know more, so if this doesn't sound like it or I shouldn't push it, just let me know and I'll take y'all's advise.
Thanks so much