Dx
Well, the neuro that did the EMG didn't give me a diagnosed but the neuromuscular dr said she thought it was benign fasciculation and cramping desease, I guess based upon the strenght I showed. Unfortunately, it may have passed her test but it's alot less strength then I should have. Of course, I was laid up for two months with neck cramping and bad headaches (which seemed to be on random head muscles that moved around, hince only ice would help...photophonia/photia were issues). It seemed to come in spells of pain then seemed to derive from cramping muscles, wether ribs or thighs, just painful. I remember pins and neeedles in back of head preceding attacks often thought pins/needles sensations were observed on and off for 3 years. Noticed wild mood swings for three years but remember sphyncter issues as well. Those have since been less of a problem but I wake up with head pain in the temple area which seems to be on and off throughout day. This also creates a face pain below right eye. The fatigue has been rediculous though is gettin better now, somewhat. Sometimes I wonder if I'm getting enough air at night. FVC showed mild asthma last Aug. Maybe in head but woke up short of breath. Diaphragm even fasciculating right where ribcage V's in middle, have felt pain there though been diagnosed with hiatal hernia.
As for the burning pain, it almost feels like someone is touching my skin with a hot pot of water and can be located on any of the extremities feeling like its on skin surface, not unlike the burning pain under eye. When I pinch it or whatever it is unaffected though when I shower or it seems to make it subside. It last for 5-20 min, moves around, and seems to be unaffected by movement. The cramping pain in ribs is on and off though bad at times and soar to touch. I've noticed slight voice changes comes and goes and can feel like one point back there is uncomfortable/painful, hoping it's acid reflux. Hands/arms shaking, single muscle jerk or "pop", and random fasciculations are all consitent problems that seem to come and go in intesity.
EMG says : The right peroneal and posterior tibial motor, F-wave and sural responses are normal. The left peroneal motor CV is normal. The left sural distal latency is prolonged but CV is normal. Both median and lateral plantar SNAP's are normal. The righ median motor, Fiwave and median ulnar sensory NC studies are normal. Needle exam of the right upper and lower extremities, cervical and paraspinal muscles show minimla increased insertional activity as noted below.
1> Mild left sural neuropathy
2 Nonfocal increased insertional activity in the right leg. This maybe seconday to mild or early neuropathic process or increased nerve excitability. Progress study recommended.
Sorry so long, but A) I dont know what the heck that means so i put it all (all i know is they want me back all the way in houston to do another spinal tap they cant get done here!) B) I didnt want to miss anything.
I don't remember if I posted high spinal tap protein (105 once and 87 once) and 3 nonspecific lesions on brain mri but no oligoclonal bands. Servical mri shows mild degenerative change w posterior disk bulge at c5/c6 w/out significant central canal or neuroforaminal stenosis.
Head is hurting like a a beast. Thanks for any and all help.
W/Love, Kris