Cmishh
Member
- Joined
- Oct 6, 2016
- Messages
- 12
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- MI
- City
- Detroit
Hi..
This is not my first time here but I had hoped I wouldn’t be back but I am so I will post what is happening now.
So in 2017 because of some leg twitching I went to neuro and had clinical exam and 2 different emgs that all came back fine/normal.
I should also state that I do have health anxiety and right now I’m not in the best place with it. I say this because I thought I read in the sticky post that a clean emg should mean no als.
My ongoing issue is that I have not felt well for over 5 years , the als fears started almost 3 years ago when the leg twitching started. I have been to numerous specialists and of course my pcp in search of some diagnosis for how I feel. This hasn’t happened and I just keep feeling worse and worse.
My ongoing symptoms really heavy legs that fatigue super easily.. used to be a runner and now taking a walk wipes me out sometimes. I still twitch anywhere from my feet up through my thighs. I have fatigue that is basically constant.. and ‘perceived’ weakness in many muscles.. legs, arms, core etc. I guess what brings me back here is that without answers I get taken back to this fear that maybe it is ALS despite all the testing I had done last year.
This sounds crazy as I am typing it but I just know in my gut that something is not right and I feel like I’m declining by the day almost. Does any of this sound remotely like the onset of ALS that was just missed. I am not trying to waste anyone’s time here AT ALL... just in a bad place right now with how I feel. Any input is welcomed and I thank you in advance for your time in reading this rambling post.
This is not my first time here but I had hoped I wouldn’t be back but I am so I will post what is happening now.
So in 2017 because of some leg twitching I went to neuro and had clinical exam and 2 different emgs that all came back fine/normal.
I should also state that I do have health anxiety and right now I’m not in the best place with it. I say this because I thought I read in the sticky post that a clean emg should mean no als.
My ongoing issue is that I have not felt well for over 5 years , the als fears started almost 3 years ago when the leg twitching started. I have been to numerous specialists and of course my pcp in search of some diagnosis for how I feel. This hasn’t happened and I just keep feeling worse and worse.
My ongoing symptoms really heavy legs that fatigue super easily.. used to be a runner and now taking a walk wipes me out sometimes. I still twitch anywhere from my feet up through my thighs. I have fatigue that is basically constant.. and ‘perceived’ weakness in many muscles.. legs, arms, core etc. I guess what brings me back here is that without answers I get taken back to this fear that maybe it is ALS despite all the testing I had done last year.
This sounds crazy as I am typing it but I just know in my gut that something is not right and I feel like I’m declining by the day almost. Does any of this sound remotely like the onset of ALS that was just missed. I am not trying to waste anyone’s time here AT ALL... just in a bad place right now with how I feel. Any input is welcomed and I thank you in advance for your time in reading this rambling post.
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