Theycallmebyers
New member
- Joined
- Jul 2, 2018
- Messages
- 3
- Reason
- Other
- Country
- US
- State
- AZ
- City
- Queen Creek
Hello,
Age: 33
Male
I found this forum as many others have, researching symptoms that lead to possibility of ALS. I appreciate all help with my concerns, my anxiety has been through the roof for the past week. A place I've never been.
My concerns:
In Feb/March 2018 I started noticing two things, my shoulders would "tire" and the muscles would feel like I just worked them out during small activities like holding up my phone or cleaning a pan or picking up a small child. And my neck/throat would get sore when chewing tough to chew food. (bread, steak, etc..)
That quickly was accompanied by the same feeling in my bicep/forearms/wrists and hands. A burning in my tricep area (as I type this my right wrist is burning).
I am seeing a neurologist who found some legions on my brain, he called mild but abnormal for my age. And we are going to do a cervical spine MRI to rule out MS. However, he suggest my issue is coming form my shoulder and just suggested I go do some PT for my shoulder, yet he wasn't specific as to what he thinks is wrong with it.
I have been very stressed and anxious lately, and have had some muscle spasms and odd feeling in my chin/throat area. Last night laying in bed to sleep my arm would spasm, my leg, my neck would feel like it's shaking. Random, not all at once but all happened in short time frame. I am telling myself it's from the stress/anxiety.
What I'd like to clear up, in hopes to help relieve my anxiety is... I have read what leads me to believe that ALS does not come on with "pain", rather it starts with the "loss of use" or clinical weakness.
What I am wondering is, does the "clinical" weakness start with feeling physical weakness/fatigue? Pain/Muscle burn when using arms, for example. Do you feel your muscle pain before you can't use it any longer?
Also, do you feel joint pain associated with ALS?
In multiple joints all at once? Wrists/Ankle(s)?
Also, It does seem like my symptoms come and go. Before a recent cross country road trip a month ago, I was dealing with a lot of pain in my arms. (was doing a heavy data project at the time). Had another bout waking up with what I call "dead arm feeling" even though I could move my arm. 3 days into the road trip I woke up feeling fine and only had the mild shoulder/bicep fatigue that started in the beginning when doing small tasks, holding my phone, etc...
Any help clarifying the "muscle pain" before "clinical weakness" would be greatly appreciated!
Also, I am in a position to donate some $ and would like to do so. Any help I can be to this horrible disease, I'd like to do. Any suggestions for best places to donate?
Thanks,
Chris Byers
Age: 33
Male
I found this forum as many others have, researching symptoms that lead to possibility of ALS. I appreciate all help with my concerns, my anxiety has been through the roof for the past week. A place I've never been.
My concerns:
In Feb/March 2018 I started noticing two things, my shoulders would "tire" and the muscles would feel like I just worked them out during small activities like holding up my phone or cleaning a pan or picking up a small child. And my neck/throat would get sore when chewing tough to chew food. (bread, steak, etc..)
That quickly was accompanied by the same feeling in my bicep/forearms/wrists and hands. A burning in my tricep area (as I type this my right wrist is burning).
I am seeing a neurologist who found some legions on my brain, he called mild but abnormal for my age. And we are going to do a cervical spine MRI to rule out MS. However, he suggest my issue is coming form my shoulder and just suggested I go do some PT for my shoulder, yet he wasn't specific as to what he thinks is wrong with it.
I have been very stressed and anxious lately, and have had some muscle spasms and odd feeling in my chin/throat area. Last night laying in bed to sleep my arm would spasm, my leg, my neck would feel like it's shaking. Random, not all at once but all happened in short time frame. I am telling myself it's from the stress/anxiety.
What I'd like to clear up, in hopes to help relieve my anxiety is... I have read what leads me to believe that ALS does not come on with "pain", rather it starts with the "loss of use" or clinical weakness.
What I am wondering is, does the "clinical" weakness start with feeling physical weakness/fatigue? Pain/Muscle burn when using arms, for example. Do you feel your muscle pain before you can't use it any longer?
Also, do you feel joint pain associated with ALS?
In multiple joints all at once? Wrists/Ankle(s)?
Also, It does seem like my symptoms come and go. Before a recent cross country road trip a month ago, I was dealing with a lot of pain in my arms. (was doing a heavy data project at the time). Had another bout waking up with what I call "dead arm feeling" even though I could move my arm. 3 days into the road trip I woke up feeling fine and only had the mild shoulder/bicep fatigue that started in the beginning when doing small tasks, holding my phone, etc...
Any help clarifying the "muscle pain" before "clinical weakness" would be greatly appreciated!
Also, I am in a position to donate some $ and would like to do so. Any help I can be to this horrible disease, I'd like to do. Any suggestions for best places to donate?
Thanks,
Chris Byers