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I had an MRI/MRA, spinal tap, multiple blood tests in the process of my diagnosis journey. My first EMG was a joke. Few sticks in each arm and oh you have carpal tunnel, no ALS. Then I go to my neurologist and he does another EMG because the first one wasn't done right, he says. But unfortunately he doesn't say let's stop the aspirin for the ten days you have to wait. So when he does all four limbs and neck, I bleed like a stuck pig and have bruises. ALS is in the differential diagnosis. So off to Dallas to see the ALS specialist. Super easy EMG, he's a master. Yes it is ALS. We can do a muscle biopsy to be sure it's nothing else. But I say no, I agree it's ALS. I watched my grandma die from it.

The average neuro only sees a few of these cases. You need to go to an ALS doc for a diagnosis. They do a far more extensive evaluation. We were with the doctor for 4 hours. He explained any thing we asked about. Gave us information to read. I travel 5 hours every 3 months at the multi-disciplinary clinic.
 
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