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Hi I am sorry you arent getting better with your therapy. However My neuro said It a good sign if they cant come up with a diagnosed. Most likely its too vague to figure out Where as a serious thing persents quickly. I wasnt diagnosed for 5 years so thats how slow my ALS was. It wasnt until I showed atropy in a arm did anyone say it was als and in a way I am glad If I knew 8 years ago it was ALS I may have given up or became a total wreck. I was always happy when I left the md, because they always gave me hope. because I was so wasnt typical . I figure so I have slurred speech I work drive go to the gym babysit dance play I never dwelled on my symptom And best of all I never ever look at this site. Now I depend on it I have become friends and found comfort. To those that do not have Dx make the best of the situation Get life insurance work keep active enjoy your life pre ALS .Until you get a diagnosed its not ALS God Bless Patltr said:Thanks Annmarie.....it has just been so hard for me lately, that I don't feel like I have too much to offer lately. After being told that my symptoms may be stress/anxiety or just plain not there and then getting a diagnosis.......and now steroids and still progressive symptoms, well, I'm at a loss. It's hard when neuromuscular diseases just have so many variance....even the docs don't know. And, to make matters worse, many of them don't really care. You either present as a typical patient or there is nothing wrong. How do ya work with that?!
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