Cmishh
Member
- Joined
- Oct 6, 2016
- Messages
- 12
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- MI
- City
- Detroit
Hello again all and thank you for taking time out to read this. I have been on this journey now for quite sometime and every now and then I get pulled back into fearing what really is going on with me is ALS. I recently saw the Neurology department at the University of Mich trying to get an answer to what has been a few years of progressive muscle fatigue and what now is virtually all over body aches and pains. I have been tested for many things autoimmune, Lyme etc and nothing has turned up. But I have gotten to a point where I can barely work, can’t stay upright for long periods of time etc. I had genetic testing done for Muscular Dystropy that came back with something, however the muscle biopsy they did ruled that out.
So my question is this, I had a clinical exam and normal EMG but the muscle biopsy did show chronic and mild neurogenic changes that listed a slew of things it could be attributed to one of which is MND. Based on the normal clinical exam and EMG they did not seem all that concerned but wanted me to come back in a few months for follow up. I have since also noticed muscle loss on the leg where they did the biopsy, my primary care doctor says this could be normal from having muscle cut into. None the less I am here and worried that what is really happening with me is motor neuron disease. Is it true to say that a normal EMG and clinical exam and all over muscle and body pain would point away from MND? I’m sorry, I’m just sometimes at such a loss as to what is happening with my muscles and no one can ever seem to give me an answer.. I know ALS is a diagnosis of elimination my concern is that lots of things have been eliminated now doesn’t that leave AlS on the table? Any feedback is Welcomed and thank you taking the time to read this.
So my question is this, I had a clinical exam and normal EMG but the muscle biopsy did show chronic and mild neurogenic changes that listed a slew of things it could be attributed to one of which is MND. Based on the normal clinical exam and EMG they did not seem all that concerned but wanted me to come back in a few months for follow up. I have since also noticed muscle loss on the leg where they did the biopsy, my primary care doctor says this could be normal from having muscle cut into. None the less I am here and worried that what is really happening with me is motor neuron disease. Is it true to say that a normal EMG and clinical exam and all over muscle and body pain would point away from MND? I’m sorry, I’m just sometimes at such a loss as to what is happening with my muscles and no one can ever seem to give me an answer.. I know ALS is a diagnosis of elimination my concern is that lots of things have been eliminated now doesn’t that leave AlS on the table? Any feedback is Welcomed and thank you taking the time to read this.