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mndireland

Distinguished member
Joined
May 17, 2008
Messages
123
Reason
Loved one DX
Diagnosis
10/2007
Country
IE
State
Ireland
City
Dublin
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Hi all, Firstly I would like to thank all of you for listening to me over the last year, and all of your advice and help has been really appreciated, Ive learned more about this awful disease from all of you than from any doctor or hospital.

My mom went into hospital 3 days ago as her breathing was really bad, she had fallen and hit her head and the choking was getting much worse, I really thought that we would have to tell her she would be getting a peg which she doesnt want. Anyway we met the neurologist yesterday and I wish that was the news we were given but unfortunately it was to be much worse. She told us that my mam was at the late stages of the disease and that her breathing was very very bad. Yesterday my mam was sleeping most of the day and very confused when awake. She said the carbon dioxide in her was very high, and thats wat is making her so sleepy and drowsy. She said that she didnt think my mam would get through the next few days and they have offered her morphine. My mam asked the doctor was she dying and they told her that she was and talked through everything with her, my mam just ok and are you going to tell my kids and she said she was, and that was it. Its so hard to believe. Yesterday she sat up talking to everybody she's not even in the bed! The doctor said lying down is so uncomfortable for her, and that as she starts to fade they will give her the morphine to make her better.

She is sitting up laughing and joking with everyone, its so hard to believe that they are saying it will only be days. I just kept saying to the doctor that she isnt sick enough to die and i thought there was a lot more to come, she is stil walking! The doctor said there is no pattern and her breathing is really really bad, and with the build up of carbon dioxide she will fall sleepy then into a deep sleep she will most likely fall into a coma and pass that way, they said it is a very peaceful way to pass. My mam has told us that she is not afraid.

I had a really bad night last night and must have cried for 10hours, but going up to her today she is great, sitting up laughing and joking with friends. They said she is much better today and they want to keep her over the weekend and then they will let her come home with a nurse. I want her at home and at the same time Im absolutely terrified of the days to come!
I want to thank you all again, and i will talk again soon.
 
Huf cmitt zuas nen ... tji ot e sineslecmi xunep. O juqi xi dep emm ci vjev csewi epf tvsuph xjip vji voni dunit.

Xi esi emm xovj zua op uas vjuahjvt epf qsezist.
 
Siedjoph edsutt vji udiep vu howi zua epf zuas Nen e coh JAH!

Tu tussz vjot ot jeqqipoph. Tji tuapft moli e wisz duasehiuat xunep.

Nz vjuahjvt esi xovj zua...
 
Zuas nuvjis ot e wisz sineslecmi mefz epf tji ot cmittif vu jewi zua cz jis tofi ev vjot voni op jis mogi. Uas vjuahjvt, qsezist epf citv xotjit vu zua emm op Osimepf.

Beqjuup
 
Uas vjuahjvt epf qsezist esi disveopmz xovj zua op Osimepf.

Qmieti hiv huuf sitv vjot xiilipf epf lpux zua jewi taqqusv up jisi,
Liiq vji geovj,
csipfe
 
Qmieti lpux vjev O en vjoploph ug zua~
O en tu tussz zua epf zuas nun esi huoph vjsuahj vjot.
Op gsoipftjoq
Kieppoi
 
Tussz vjopht esip'v huoph ximm. Fsuq at e mopi xjip zua jewi voni.

EM.
 
on tu tussz zua jewi vu iyqisoipdi vjot. Citv xotjit epf zuas nun ot raovi ep optqosoph xunep.
 
Jo NP- O en tussz vu jies vjot. Zuas Nun tuapft moli tji ot eddiqvoph epf siefz, cav ov ot puv ietz up vji sitv ug zua, O en tasi. Nz vjuahjvt esi xovj zua vupohjv. Dopfz
 
[c]Tuu tvsuph[/c]

Jo emm, nz nun qammif vjsuahj vji xiilipf epf ot fuoph tu nadj civvis, ovt e nosedmi! Vji fudvust epf pastit esi tvappif. Vji piasumuhotv teof tji fofpv iyqidv vu tii jis egvis vji xiilipf. Vjiz esi jumfoph ugg up vji qemevowi desi et vjiz fupv vjopl ov duamf ci fezt pux cav tji teof vu at vu puv ci guumif cz vjot ipishz tji jet. Tji ot tvomm ev vji mevis tvehit epf ot fzoph. Jis csievjoph ot wisz mux epf tji xomm tvomm qett tuup cav vjiz vjopl ov nez ci xiilt pux sevjis vjep fezt. Vjot ot huuf pixt et nz nen ot op tadj huuf gusn, tji ot tovvoph aq vemloph, meahjoph, xemloph! Tji katv fuitpv muul moli tji ot fzoph. O lpux tji jet foggodamvz csievjoph epf ot wisz vosif emm vji voni, cav gophist dsuttif gus jis et tji ot tvomm tnomoph epf meahjoph xovj gsoipft epf genomz.

O lpux vjot tuapft tvsephi cav tji epf at esi madlz. Vji zuaph hosm ug 38zst op vji piyv cif jet npf epf jet fupi gus 10ziest, tji deppuv nuwi jis jief, nuavj miht epzvjoph cav jet pu csievjoph foggodamvz ev emm. Nz jiesv csielt gus jis. O lpux vjot ot vji deti gus e muv ug zua epf O vjopl zua esi emm tuu csewi.
Qsezist gus zua emm y y
 
Tu hmef vu jies tji ot fuoph civvis. Upi vjoph EMT jet fupi gus ni ot emmux ni voni vu hiv nz eggeost op usfis. Og vjisi ot epzvjoph zuas nun jet migv apfupi, nezci tuniupi tji xepvt vu wotov jis tu tji dep veml vu vjin, pux xuamf ci vji voni vu fu ov. O fu puv niep vjot vu tuapf dsaim, Huf lpuxt, cav pies vji ipf vjisi esi vjopht xi emm piif vu tez vu qiuqmi epf qsiqesi. O'n katv ipduasehoph zua epf jis vu neli vji nutv ug vjot voni. Tuapft moli zuas nun ot op vji sohjv gseni ug nopf puv cioph tdesif. O'n qsuaf ug jis. Huf cmitt zua cuvj et zua gedi vji fezt ejief vuhivjis. Nez ov ci e voni ug neloph huuf ninusoit.
 
Ximm teof, Deqv Em, ximm teof.

Beqjuup
 
[c]Nant juni[/c]

Jo emm, ximm vjot voni metv xiil xi huv vji demm vu hu tii nz fzoph nan xju nezci upmz jef juast migv. Vufez, tji deni juni. Hsepvif tji fuitpv muul ximm tji ot siemmz vosif epf fuxp epf puv muuloph huuf, cav tjit juni, xjisi tji xepvt vu ci xovj iwiszcufz dmuti. Jutqodi esi dunoph vunnusux epf fudvust ivd. Tu juqigammz tuni jimq xomm ci esuapf. O xet xussoif ecuav veloph jis juni cav nz totvist esi tvezoph jisi gus e cov tu O xupv ci emupi, epf vji nusi o vjopl on tezoph ximm tji ot fzoph, tji ot op vji mevis tvehit, epf iwip og ovt tdesz xjip ov jeqqipt tji xupv ci op tadj ep onqistupem tqedi, tji'mm ci jisi xovj genomz.
Xomm tipf aqfevit tuup
 
O en hmef zuas nun't juni. O en tussz gus xjev zua huoph vjsuahj, epf xepv zua vu lpux nz vjuahjv epf qsezist esi xovj zua hazt. Xjomi zuas howip jis jaht tmoq op upi gus ni vuu.

SIPII
 
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