Max2525
New member
- Joined
- Jun 29, 2022
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- FR
Hello,
My name is Max, I am 23 and I live in France. I know that there are people on this forum who are suffering of ALS or who know relatives who suffer from this disease. I respect the pain of everyone and I present my apologizes if my story could look ridiculous sometimes. I will try to be short.
My symptoms began mid september 2020 where I started to experiment a kind of numbness, especially on the left side. After a week, I started to experiment fasciculations (the numbness I could experience in the left side was still here but not all the time). At the beginning it was on the knee and the feet, but it quickly reached the whole body (eyes, arms, hand, belly and even buttocks or back from times to times). The time passing, I also had a feeling of weakness, especially on the left arm and the left leg. My arms, hands and feet were tremoring when I placed them in tense or in a specific position. Face to these strange symptoms, I did 2 MRI and 1 EMG of the legs in August 2021. The results were negative, despite there was something strange especially on my left leg. From this time, my symptoms in the members didn't really evolve, they didn't decrease but they didn't increase. However, for 1 month, I am experiencing very strange symptoms around the head. Firstly, I have several times in the day where I have a kind of burning in both ears' pavilion. Some day it can be very intense and pretty often, others days not so often. But for almost 2 weeks, I have a kind of difficulty to speak when I am saying something, like if I had a spasm in the throat or a tremor. On the same time, I noticed that my tongue was tremoring too and that I had fasciculations on it. Even if my PCP seemed not worried, I am afraid that I could have ALS and that for 1 month, I began to have bulbar symptoms.
I could also precise that I am very anxious about serious diseases. In February I had a lot of difficulties to sleep and I was worried to have fatal sleep insomnia. On the same time, for more than 1 year, I often suffer from diarrheas and I was worried to have a serious disease (pancreatic cancer...).
Voilà, thank you a lot for reading my story.
Best regards,
Max
ps: My apologizes if I commited some mistakes in English
My name is Max, I am 23 and I live in France. I know that there are people on this forum who are suffering of ALS or who know relatives who suffer from this disease. I respect the pain of everyone and I present my apologizes if my story could look ridiculous sometimes. I will try to be short.
My symptoms began mid september 2020 where I started to experiment a kind of numbness, especially on the left side. After a week, I started to experiment fasciculations (the numbness I could experience in the left side was still here but not all the time). At the beginning it was on the knee and the feet, but it quickly reached the whole body (eyes, arms, hand, belly and even buttocks or back from times to times). The time passing, I also had a feeling of weakness, especially on the left arm and the left leg. My arms, hands and feet were tremoring when I placed them in tense or in a specific position. Face to these strange symptoms, I did 2 MRI and 1 EMG of the legs in August 2021. The results were negative, despite there was something strange especially on my left leg. From this time, my symptoms in the members didn't really evolve, they didn't decrease but they didn't increase. However, for 1 month, I am experiencing very strange symptoms around the head. Firstly, I have several times in the day where I have a kind of burning in both ears' pavilion. Some day it can be very intense and pretty often, others days not so often. But for almost 2 weeks, I have a kind of difficulty to speak when I am saying something, like if I had a spasm in the throat or a tremor. On the same time, I noticed that my tongue was tremoring too and that I had fasciculations on it. Even if my PCP seemed not worried, I am afraid that I could have ALS and that for 1 month, I began to have bulbar symptoms.
I could also precise that I am very anxious about serious diseases. In February I had a lot of difficulties to sleep and I was worried to have fatal sleep insomnia. On the same time, for more than 1 year, I often suffer from diarrheas and I was worried to have a serious disease (pancreatic cancer...).
Voilà, thank you a lot for reading my story.
Best regards,
Max
ps: My apologizes if I commited some mistakes in English