twospeed99
Active member
- Joined
- Jul 23, 2005
- Messages
- 33
Seen the neuro the other day he says my mri is clean and he stands by his slowly progressive ALS diagnosed.My brother has had MND that effected his hands, forearms and throat for 23 years and just last year this same neuro diagnosed him with ALS( read my first post).I asked if this was ALS as in ALS or was he lumping us in with it, his reply was it is the best explaination.He believes it won't shorten my life but I better think of doing something other than truck driving to earn my living as it will slow me down in the future.He believes I've had it for a while and have adjusted with it, I brought some pictures from 15,10,5 years back and he says he can see my hands are bony in some from 5 years ago.He said we are unique and wants to send me to the ALS Clinic in Vancouver.I feel great usually get tired and stiff when I work but I work 14 hours of heavy lifting, but really I feel good other than the mind stuff, I can really bring myself down some times.
I asked him to show me where there was muscle wasting, he said some minor muscle loss between thumb/index and palm side under pinky he can feel bone, did strength test on thumb and said I have minor strength loss, so 2 minors yea.He doesn't see it any where else as of yet.Are all neuro's bizzare people, this guys like that dude that used to to paint happy mountains and cheery sunshine on tv.Well I've been told four times it is mild so I should be happy with that, but I think the clinic will be the main thing.I mentioned some other diseases that mimic ALS and he said I'll never be a Neurologist reading the internet.Now that my anxiety is controlled somewhat I feel 100% better, my hands both feel a little stiff but have good strength, some minor twitching all over that started after I was told so might be stress.Truthfully I think only time will tell how progressive this is, I'll just have gauge it every six months for a year or so and see where I'm at.I used to work 70 hour weeks (5 days) before diagnosis now work 42 (3days), on my four off I feel great, when I work I feel stiff but I lift lots, my hand strength is still pretty good i feel more stiff than anything and my middle fingers twitch back and forth a bit on both hands, every now and then my forearm from wrist to elbow throb, hands are a bit stiff when worked great when at rest.Any how I'll keep you informed as to my saga, Never thought I'd be hoping I had slowly progressive ALS.
I asked him to show me where there was muscle wasting, he said some minor muscle loss between thumb/index and palm side under pinky he can feel bone, did strength test on thumb and said I have minor strength loss, so 2 minors yea.He doesn't see it any where else as of yet.Are all neuro's bizzare people, this guys like that dude that used to to paint happy mountains and cheery sunshine on tv.Well I've been told four times it is mild so I should be happy with that, but I think the clinic will be the main thing.I mentioned some other diseases that mimic ALS and he said I'll never be a Neurologist reading the internet.Now that my anxiety is controlled somewhat I feel 100% better, my hands both feel a little stiff but have good strength, some minor twitching all over that started after I was told so might be stress.Truthfully I think only time will tell how progressive this is, I'll just have gauge it every six months for a year or so and see where I'm at.I used to work 70 hour weeks (5 days) before diagnosis now work 42 (3days), on my four off I feel great, when I work I feel stiff but I lift lots, my hand strength is still pretty good i feel more stiff than anything and my middle fingers twitch back and forth a bit on both hands, every now and then my forearm from wrist to elbow throb, hands are a bit stiff when worked great when at rest.Any how I'll keep you informed as to my saga, Never thought I'd be hoping I had slowly progressive ALS.