daughterofALSpa
New member
- Joined
- May 31, 2019
- Messages
- 2
- Reason
- Loved one DX
Hello--this is my first time posting on this forum. My dad was originally diagnosed with PLS about 15 years ago; 2 years ago, the diagnosis was changed to ALS. He is wheelchair bound and needs assistance with all aspects of daily living. He has a catheter and needs food pureed. It's very hard to understand him when he speaks. He also seems to be having memory issues and has become very belligerent (which he was before he was sick as well).
He has multiple aides who currently come to the house; someone is there through the whole day except between 11pm-7am. However, after all these years, my mother is exhausted, and we are looking at moving my dad out of the house.
We were told to look at skilled nursing, but it's really expensive, and we feel that much of the rehabilitative services they offer wouldn't be relevant to my dad, as we'd like him to be treated more like a hospice patient at this point (he keeps saying he just wants to die). He also does not want any assistive devices (i.e. a feeding tube) should he need one. So we've also looked at assisted living and memory care, but I'm worried that his physical limitations are more than what most people in those facilities have.
Has anyone moved a loved one out of the home? If so, where have they moved them and do you have any advice about choosing a facility? Many thanks.
He has multiple aides who currently come to the house; someone is there through the whole day except between 11pm-7am. However, after all these years, my mother is exhausted, and we are looking at moving my dad out of the house.
We were told to look at skilled nursing, but it's really expensive, and we feel that much of the rehabilitative services they offer wouldn't be relevant to my dad, as we'd like him to be treated more like a hospice patient at this point (he keeps saying he just wants to die). He also does not want any assistive devices (i.e. a feeding tube) should he need one. So we've also looked at assisted living and memory care, but I'm worried that his physical limitations are more than what most people in those facilities have.
Has anyone moved a loved one out of the home? If so, where have they moved them and do you have any advice about choosing a facility? Many thanks.