olly
Extremely helpful member
- Joined
- Jan 10, 2008
- Messages
- 2,743
- Reason
- PALS
- Diagnosis
- 11/2007
- Country
- uk
- State
- uk
- City
- uk
hello everyone,i hope you all are ok.
with one thing and another this past 2wks i have not been around(just the chance to bob in and out for 5minutes)
the bulbar symptoms(jaw spasms) reached crisis point last week with 20 or more a day.
my chin area keeps dropping now when talking sometimes,i guess its weakness:-(.
any enough about that.
last week i finally was told by my local council they have a disabled adapted home for me,i have been waiting over 18mths.
i live in a 2storey house with big garden on a hill,least to say these past few years i can no longer manage.
my new home is a ground floor flat(apartment to the none brits)
it has patio areas for the residents,very quiet and private.
it is 3miles away from here in a country village were i grew up,so i know the area.
my younger sister lives down the road from my new home.
it is adapted for wheelchair users(hope i wont need one for a bit longer yet)
also it has a special bathroom fitted called a wet room.
i will miss here and my beautifull garden but it has to be done.
so i will be gone for a few weeks,sorry forgot i move next saturday.
will be busy this week,lots of people helping me.
i will try to stop by and say goodbye,i will miss you all.
rose..........i read your aspiration thread,sorry i could not reply but you have been in my thoughts all week. i hope you feel better soon.
hopingforcure,rose and sharona i will try and send a pm later this week.
now,last week also i got a new addition to my family................a 6wk girl kitten called daisy.
she and her siblings had to be hand reared as there mum was too ill.
she has us up at 6am and is a handfull for something so tiny.
she is still on some milk but eats tiny bits of food now.
oscar my 3yr old ginger tom is not impressed by this new arrival,he will be distraught when we move as his brother lives next door.
sadly on the day we move it will be a year to the day olly (oliver) died.
i have attached a photo of daisy.
i will keep you all in my thoughts while i am away.
with one thing and another this past 2wks i have not been around(just the chance to bob in and out for 5minutes)
the bulbar symptoms(jaw spasms) reached crisis point last week with 20 or more a day.
my chin area keeps dropping now when talking sometimes,i guess its weakness:-(.
any enough about that.
last week i finally was told by my local council they have a disabled adapted home for me,i have been waiting over 18mths.
i live in a 2storey house with big garden on a hill,least to say these past few years i can no longer manage.
my new home is a ground floor flat(apartment to the none brits)
it has patio areas for the residents,very quiet and private.
it is 3miles away from here in a country village were i grew up,so i know the area.
my younger sister lives down the road from my new home.
it is adapted for wheelchair users(hope i wont need one for a bit longer yet)
also it has a special bathroom fitted called a wet room.
i will miss here and my beautifull garden but it has to be done.
so i will be gone for a few weeks,sorry forgot i move next saturday.
will be busy this week,lots of people helping me.
i will try to stop by and say goodbye,i will miss you all.
rose..........i read your aspiration thread,sorry i could not reply but you have been in my thoughts all week. i hope you feel better soon.
hopingforcure,rose and sharona i will try and send a pm later this week.
now,last week also i got a new addition to my family................a 6wk girl kitten called daisy.
she and her siblings had to be hand reared as there mum was too ill.
she has us up at 6am and is a handfull for something so tiny.
she is still on some milk but eats tiny bits of food now.
oscar my 3yr old ginger tom is not impressed by this new arrival,he will be distraught when we move as his brother lives next door.
sadly on the day we move it will be a year to the day olly (oliver) died.
i have attached a photo of daisy.
i will keep you all in my thoughts while i am away.