Sk971
New member
- Joined
- Feb 24, 2021
- Messages
- 7
- Reason
- Learn about ALS
- Diagnosis
- 01/2020
- Country
- UK
- State
- LD
- City
- London
Mother possible MND no muscle loss
Hello All and apologies for a long winded post.
My Mother 78 (now 80) at the time had sustained illness and hospitalisation following a stroke and fractured hip from September 2019 for approx 10 weeks and variously had
sepsis , DVT , ocular hypotension, delirium , grade 3 bedsores , and further fall and concussion following her hip replacement.
the hospital also increased her dose of pregablin lyrica (peripheral neuropathy) to a very high 750mg
At the end of her stay she was diagnosed as having brisk reflexes and an EMG was performed showing irregularities and possible MND
We were overwhelmed at the time and were desperate to get her out of hospital as we felt her physical and mental state were declining .
Her Physio only really got underway in January 2020 at which point she had significant muscle wastage in her left quad and calf muscle as well as drop foot . She had over a period of several months regained her muscle tone and the drop foot has recovered .
We had to cancel further EMG tests and appointments due TO COVID and had a telephone appointment with a neurologist who expressed surprise that her physical condition had improved Now 15 months later from the initial possible diagnosis we have been contacted again regarding an EMG .her walking is still hindered by hip pain and her physio recovery has been very slow however her muscle mass , general strength and balance has noticeably improved She does not suffer from muscle twitches , speech , swallowing difficulties but does get muscle cramps .
she has gained weigh , is eating well and is otherwise seems well.
So a few questions please.
Isi it possible to regain muscle with ALS / MND ?
can EMG tests be inaccurate ?
can some forms of MND be much slower?
Thanks in advance Simon
Hello All and apologies for a long winded post.
My Mother 78 (now 80) at the time had sustained illness and hospitalisation following a stroke and fractured hip from September 2019 for approx 10 weeks and variously had
sepsis , DVT , ocular hypotension, delirium , grade 3 bedsores , and further fall and concussion following her hip replacement.
the hospital also increased her dose of pregablin lyrica (peripheral neuropathy) to a very high 750mg
At the end of her stay she was diagnosed as having brisk reflexes and an EMG was performed showing irregularities and possible MND
We were overwhelmed at the time and were desperate to get her out of hospital as we felt her physical and mental state were declining .
Her Physio only really got underway in January 2020 at which point she had significant muscle wastage in her left quad and calf muscle as well as drop foot . She had over a period of several months regained her muscle tone and the drop foot has recovered .
We had to cancel further EMG tests and appointments due TO COVID and had a telephone appointment with a neurologist who expressed surprise that her physical condition had improved Now 15 months later from the initial possible diagnosis we have been contacted again regarding an EMG .her walking is still hindered by hip pain and her physio recovery has been very slow however her muscle mass , general strength and balance has noticeably improved She does not suffer from muscle twitches , speech , swallowing difficulties but does get muscle cramps .
she has gained weigh , is eating well and is otherwise seems well.
So a few questions please.
Isi it possible to regain muscle with ALS / MND ?
can EMG tests be inaccurate ?
can some forms of MND be much slower?
Thanks in advance Simon