AliCat
New member
- Joined
- Sep 3, 2018
- Messages
- 8
- Reason
- Loved one DX
- Diagnosis
- 08/2018
- Country
- US
- State
- MA
- City
- Boston
Hello all,
My mother has been living with ALS for nearly two years now. She has lost all ability to speak and only has use of the fingers on her left hand.
I got a phone call tonight from my sister that my mom had likely died. My stepfather found her slumped over while on the toilet and couldn’t find a pulse and she wasn’t breathing. Paramedics were called and they couldn’t find a pulse either. She was brought to the local hospital and they put her on bipap, and when they did that, she started to breathe again and her heartbeat returned. She does seem to be unconscious and unaware of her surroundings. A CT scan was normal but they did discover she has pneumonia. She is being transferred to Mass General.
She has a DNR so bipap is the only intervention she has. Has anyone had an experience like this with their loved one? I just don’t see where we can possibly go from here. Part of me just wants this all to be over and I feel guilty for thinking that way.
Alison
My mother has been living with ALS for nearly two years now. She has lost all ability to speak and only has use of the fingers on her left hand.
I got a phone call tonight from my sister that my mom had likely died. My stepfather found her slumped over while on the toilet and couldn’t find a pulse and she wasn’t breathing. Paramedics were called and they couldn’t find a pulse either. She was brought to the local hospital and they put her on bipap, and when they did that, she started to breathe again and her heartbeat returned. She does seem to be unconscious and unaware of her surroundings. A CT scan was normal but they did discover she has pneumonia. She is being transferred to Mass General.
She has a DNR so bipap is the only intervention she has. Has anyone had an experience like this with their loved one? I just don’t see where we can possibly go from here. Part of me just wants this all to be over and I feel guilty for thinking that way.
Alison