janejane65
New member
- Joined
- Apr 23, 2008
- Messages
- 5
- Reason
- Loved one DX
- Diagnosis
- 04/2008
- Country
- US
- State
- alabama
- City
- mobile
I was wondering if anyone out there could help me. My mother seems to be progressing very fast with ALS. She is 69. She has limb onset. Her fatigue is so great that she can hardly get out of bed. She has opted not to use Bi-pap. She is on oxygen. I think that she does not want to prolong this disease. She describes this fatigue as different. She cannot seem to explain. She says there is an uderlying feeling of nausea. She also has a relentless cough that wears her down. The ALS has attacked her lungs. I feel very helpless. If anyone knows about this please share your experience with me. Thank you Janie