amber83
New member
- Joined
- Nov 22, 2022
- Messages
- 5
- Reason
- Loved one DX
- Diagnosis
- 08/2021
- Country
- US
- State
- PA
- City
- Philadelphia
Hello everyone. I want to start off by saying thank all the als warriors and the soldiers who fight to care for people with this devastating disease. I am a 39 year old disabled veteran with ptsd a single mom of an 11 yr old daughter who I raise myself and a mother with bulbar als. My mom Jackie is my best friend she is 55 on a ventilator has a trach and feeding tube. She is nearly paralyzed and can not scratch her own head. Her husband takes full time care of her and is a saint. I go almost daily if not every other day to help.
I am trying to juggle school and keep my job but it’s so much. My mother has a bad back for years and so do I. I’m having twitching in my calves along with a lot of back pain. I do have a herniated disc from a fall in the arm the l5 s1 I believe.
My mom Is the first person that I know of in the family with als. Sometimes I wonder if I should get the genetic testing if it would help my anxiety and fears. However what if deep down inside I’m right there probably is a gene. I’m a mess I’m single don’t have much other family or friends. If I get the disease I won’t have a good man to care for me. Plus who will raise my daughter. I
feel like my moms nerve damage in her back is what triggered the disease to begin and I have nerve damage as well. I need support I’m so afraid all the time . Just the thought of my mom not being here makes me sick. Then I gotta go on and survive without her and then worry about the disease. It’s consuming me . Please help!! Thank you
I am trying to juggle school and keep my job but it’s so much. My mother has a bad back for years and so do I. I’m having twitching in my calves along with a lot of back pain. I do have a herniated disc from a fall in the arm the l5 s1 I believe.
My mom Is the first person that I know of in the family with als. Sometimes I wonder if I should get the genetic testing if it would help my anxiety and fears. However what if deep down inside I’m right there probably is a gene. I’m a mess I’m single don’t have much other family or friends. If I get the disease I won’t have a good man to care for me. Plus who will raise my daughter. I
feel like my moms nerve damage in her back is what triggered the disease to begin and I have nerve damage as well. I need support I’m so afraid all the time . Just the thought of my mom not being here makes me sick. Then I gotta go on and survive without her and then worry about the disease. It’s consuming me . Please help!! Thank you
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