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Beebe

Distinguished member
Joined
May 2, 2006
Messages
319
Diagnosis
4/2006
Country
oce
State
new jersey
City
forked river
Hi Wheelchairdriver

All I can say to your post Life isn't done till it's done is AMEN! My best to you, Beebe
 

sufernan

Active member
Joined
Sep 11, 2006
Messages
66
Reason
Lost a loved one
Country
CA
State
Ontario
City
Toronto
Wise and wonderful people

ALS has changed my life in two ways: it made me at widow at age 36 with a small son and it tought me how to love. I believe God is love and to love is the most important thing we can do with our lives.
You have open my heart a little more with your postings - thank you for teaching me how to live! I think I have learned the most important lessons in my life from people with ALS.
Sunny
 

quadbliss

Distinguished member
Joined
Dec 12, 2006
Messages
392
Reason
PALS
Diagnosis
07/1998
Country
US
State
California
City
Benicia
Hi Sunny,

The human experience is similar to river rafting. You can use your paddles and try to avoid the big objects, but don't fool yourself, the river is in control. You can't go backwards, or change its course. You must take what the river gives you and do your best to handle it gracefully, all the while, enjoying the ride.:-D

Mike
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
I went to the funeral parlor today to see a man I met last summer. He was diagnosed with ALS in Dec. of 2005. He passed away on Tues. We kept promising to get together again but he was involved in his things and me with mine. My wife talked with his wife but we just never got around to getting together. He had limb onset and is gone in a year. Very fast and unexpected. A blunt reminder to me to not put off things until tomorrow. Tomorrow may not come. AL.
 

CindyM

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Joined
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Messages
3,543
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Learn about ALS
Country
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Al- good reminder. We all need to remember this and it doesn't hurt to be reminded from time to time.

Wheelchair driver: welcome to the forum. Did I read it right that this is your first post? You are my new role model! I don't even have a firm DX yet and usually am too tired to get off the sofa, but here you are scooting around on snow mobiles!
 

Wheelchairdriver

New member
Joined
Dec 29, 2006
Messages
4
Reason
PALS
Country
US
State
Minnesota
City
Walker
DIDN, spend all my time snoscooten

I was diagnosed Feb. 05 with leg onset ALS .The first spring I started my last woodworking project and built my own casket. My wife thouhgt I was crazy but said it turned out beautiful ,Buy the time Iwas done with I was ready for my Wheelchair.
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Just when I thought I'd heard everything. Quite innovative Wheelchairdriver. I know quite a few guys that do woodworking but have never seen them do a projet that would be that useful in the end so to speak. Good one! AL.
 

CindyM

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3,543
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
Now that's my kind of attitude! Got yourself a hobby that will also prove useful!

BTW, today (again) my tongue feel furry and thick. I thought I was talking funny and asked Lee if I sounded so to him. He said he couldn't hear it. I replied that my tongue felt thick. He said, "It has to be from overuse. It got that way because you talk so much. Just like when you used to go to the gym, Cindy. You exercise a muscle it gets thicker. Try talking less."

That's my guy!:-D
 
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