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Sammantha

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Hi everyone i have been on this site for a loooooooong time...... I get to add another specialist to my list, a cardiologist... Awhile back i was having heart palpatations that would awake me at night.... Three days ago i pushed myself to work and i was sick. I thought the virus settled into my chest as it was so sore, but i had no cough.. Then before i went to work i took a shower and the mist made me short of breathe, i had palpatations and was so dizzy... This passed and i went to work, by the end of the day my chest was so sore i went to bed early... I awoke directly at 1:30 am to my heart feeling like it was going to jump out of my chest. I sat up and tried to meditate, i then walked around... it was not getting better and i called 911. The ambulance hooked me up to a monitor in my house then put me in the ambulance they gave me a shot to regulate my heart beat but it did not work, the ride was fifteen minutes long... I got to the hospital and my heart rate had finally dropped to 120. I stayed for a few hours and they took a chest x ray and kept me hooked to the EKG. My heart rate finally settled at 90... I went home, the ER doc referred me to a cardiologist........ I feel like the closer i get to death the closer i get to a diagnosis..... By the way the ER doc called it PSVT..

I was lucky in the sense that the fast heartrate lasted so long because they were able to catch it on the print out, the doc said sometimes by the time you get to the hospital your heartrate returns to normal and it does not show up on the print out...... Why do i have to go through these horrible experiences before i get help? I am starting to feel sorry for myself and that doesn't help anybody! Best wishes to all, i will write back when i see the cardiologist... Sam
 

BethU

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Holy mackeral, Sam ... you are going for the world recprd, aren't you. THANK HEAVENS you got to the ER and got straightened out. I'm praying for you, and sending good vibes, and wishes and hopes that this will be under control soon and for good.

The good part is that cardiology research has been funded up the wazoo ... it's not an orphan disease like ALS ... so they really know how to handle these things and keep you going.

Big hugs. Hang in there.
 

hopingforcure

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Hi Sam,
I am sorry to hear you are going through anything else....I was talking to Jenny, and her and I seem to be in agreement that this sounds neurp-muscular in nature. I just hate to see you go through all this crap...I think you should get disability, it seems that you are just getting such the run around.
 

lydia

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Hi Sam,

I feel for you I really do. How much can one person go through? It does seem as if you have to go through the wringer to get all your clues. How frightening this must have been! Boy I sure hope the information gathered from it will provide some glorious insight to your doctors as to what is going on with you. Please take care of yourself and know that there are many here who think about you and what you are going through (even if we don't necessarily post all that often).

Lydia
 

olly

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PALS
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hi sammantha

i know 100% how you feel,i have had arrythmias for some years now.
mine can last from a few minutes to a day or so.
i get the palpitations and shortness of breath and have had ecg,s that have showed it up days after an attack.
in between attacks most of the time the blood pressure and heart rate is low.
i can have blackouts if it suddenly drops,i had to get a blood pressure moniter to keep an eye on it.
after a blackout my son will take my blood pressure and heart rate(they do heart rate on the machines as well) it can be as low as 80/40 pulse around 50.
i was told palpitations are because your blood pressure drops and your heart needs to pump faster to get the blood circulating,the breathlessness is due to not enough blood/oxygen is getting up to the brain/lungs quick enough.

get a blood pressure moniter,take it 3times a day at the same time and keep a record,if you have a bad episode take it.
then you have somerhing to show the doctors,the machines dont cost much for a decent one from a pharmacey.

i dont know why mine is,they did a few years back suspect multi system atrophy because of this.
as someone said some neuro muscular deseases can effect the heart muscles.
i hope you are feeling a little better:)
 

rose

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Sam,

Geeze Louise! I'm thankful to learn that you're ok, and if something like this had to happen, very glad they were able to document it. Just know that arrhythmia's aren't always indicative of something terribly bad, and also might not have any relation to your other problems. I have mitral valve prolapse, and this will cause me to have the irregular heartbeat, especially if I don't get enough rest, enough to eat, and am under stress. stress being the biggest influence. They found it when I was a little younger than you, and it has seemed to wax and wane as far as how much I notice it. Mostly I figure that if it hasn't caused significant trouble by now, that its not going to. At first they had me on beta blockers, which I hated, and took for only a short while.

I agree that if you get one of those monitors, it could be most helpful.

Please let us know what you find out. I hope, as there has been so much research in the cardiac field, that your doctors will get it sorted out right away. ((Hugs!))
 

ktmj

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Sam, I hope you get this figured out quickly - I know it is frustrating. I have had atrial and ventricular premature heartbeats since my teens. My muscle twitching started when I was 21. My current symptoms officially started when I was 36, then stepped on the gas about 5 months ago (weakness, atrophy, cramps, spasms, blah blah). I'm 42 now. One thing I have noticed is that times it feels that my heart is pounding all over my body, especially later in the day. Not really all that fast, but just like it is felt everywhere.

I hate you are going through this. God bless and take care.
 

crystalkk

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Sam,

I feel so bad, just what you needed another thing. You joined this site around the same time as me. I still don't have any diagnosed either.
 

awieleba

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Sam,

please take care of yourself! You are so strong to be going through all this and now working full time, bless you!
I have some heart issue's as well. I have mitral valve prolapse, that is not that big of deal. But when I was in the hosp last spring I had crazy heart and blood pressure. It felt like my heart was flipping around in my chest. Then my heart rate would drop into the 40's at night and I wore a heart monitor 24/7 and was moved into the cardiac area. Then by BP would shoot up to like180/100! I would feel like passing out, I was all over the board and it was scary. I had a ecg and echo and the cardiac doctor told me that it was my autonomical nervous system causing it. Ihave not had the problem since, thank god!

I hope you get some anwers soon. Bless you!

april
 

wheeler641

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sam, I am so sorry this is happenning to you, I can totally relate. I always tell my friends and family that I will get a final DX at autopsy, I quess it would be a final one l.o.l. Your experience must of been real scary and I am so sorry you had to go through it. I have been to so many different kind of doctors, right now I am seeing 3, next month four, I am seeing an endocrinologist, a Gp, a Rhuemy and next month probably a nuero. I have been getting diagnosed with various things, but as of yet no one has been able to connect the dots.As of today I have been diagnosed with type 2 diabetes, High blood pressure, polymyalgia rhuematica,low potassium and magmesium, high cholesteral and tryglicerides.. Somehow I want to think most of this is all connected some way. I am on so many med that some days I would like to stop taking them all and see what happens. I am on medicare and I still have to pay 20% of my doctors bills, so if they do not find and answer soon my bank account will be drained It is just all so frustrating, Hope you find out something soon, margaret
 
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